It does seem to be a never ending battle. I had a recurrence after my first cycle of BCG but a follow up cysto after that TURBT (and more BCG) showed no evidence of disease (April 2017). Fingers crossed that my next cysto in July is also clean. I think this is something we're always going to have to deal with as long as we have our bladders. It's an anxiety filled inconvenience that sometimes ends in disappointment, fear and heartbreak but we'll just keep trucking on through.
Dx 5/25/2016, First cysto and TURBT 5/23/2016, 2nd cysto and TURBT 6/20/2016, Original tumor size (by CT): 7.3 cm x 4.8 cm x 4.8 cm, BCG 8/31/2016-10/12/2016,
Cysto 11/15/2016: Recurrence , TURBT (#3) 12/5/2016, BCG x 3 weeks, off 1 week x 1 year (end Jan 2018)
Cysto 4/5/17: NED!!
1 year 7 months ago - 1 year 7 months ago#53208by dieseldoc
Well, checkup didn't go so good. I had 1 tumor and a very suspicious red spot that he said he would have to biopsy! I just can't seem to get a break! Bummer.
Catherine, I need a big snap and some tootsie pops to:(