BCG delayed again, WORRIED.

During my first 6 week BCG treatment, I was delayed 2 months after the 1st week because of a BCG shortage. Sara.Anne came to the rescue, told me it shouldn't make a difference, now, over 2 years afterwards, all is well. Jay

I had a wait too (I forget how long). I too was worried but the folks on this forum assured me my wait was in the normal range and a second opinion confirmed that. But every story and person is different. If you think you are being told to wait too long don't wait, get a second or third opinion.

Ray,

I have been a frequent bleeder, as the initial symptom, with BCG treatments, and sometimes for no understood reason. At one point I had to have a bladder bleed cauterized so I would stop bleeding and could continue with BCG. My doctors all claim that it is better to wait than use BCG while blood is present. Dr. Lamm also recommends holding BCG treatments if there is blood; Dr Lamm expects side effects to occur and accepts delays as part of the BCG protocol..

Still, I just want to get on with the program. I don't want to wait. I want to hit the cancer as hard as possible. I get so worked up at waiting.

I am slowly learning to be more patient.

I hope they find an answer for your bleeding and can address the issue of treatment.

Best
Jack

Another setback. Had my first BCG session last 3-3-17 Friday. No issues, no pain no sickness. Passed some scab looking material on Sunday, still no pain or issues. Wednesday morning passed a large bright blood clot (Q tip size) that dissipated slowly in the toilet bowl. Passed several more small specks of bright red clots Wednesday and Thursday. Just spoke with the Dr at Sloan Kettering and they are delaying Friday's BCG. I have to go on Tuesday for a cystoscopy to see why I still have blood nearly 8 weeks after TURBT. Dr said they want to see if "Everything is alright". Starting and stopping treatment can't be good at all.