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mitomycin treatments

2 years 11 months ago #51959 by F7R8
Thanks for the input. I have been doing a lot of research and am going to get a second opinion for sure. Everything I am reading suggests that BCG may be a better option for me. It is time to do something different.

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2 years 11 months ago #51943 by Jack R

The following article may shed some light on the decision to use one treatment rather than another. This article offers just one point of view, HOWEVER, the first named author is Donald Lamm, a long time BCG researcher who is highly respected. I found the article to be a new twist from the doctor best know for BCG protocols.

Always question your doc about YOUR treatment, and, as was suggested, you may want to seek a second opinion.


What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
Tis CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis

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2 years 11 months ago #51942 by sara.anne
Why is your doctor recommending mitomycin instead of BCG? According to what I read, BCG is much more effective. A few years ago there was a real shortage of BCG and many patients could not get it, but that appears to be over now.

Have you considered getting a second opinion? A third recurrence is nothing to be casual about. It might be a good idea to get a second opinion at a place that sees LOTS of bladder cancer patients and is aware of the best treatment options.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: F7R8

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2 years 11 months ago #51941 by F7R8
I was diagnosed in July of 2014 with a 2.5 cm Ta N0 mo. I had a TURBT in Aug. of 2014 with a mitomycin treatment. I had one re-occurrence 9 months post op where a small (3mm) tumor was removed, biopsied, and the tissue burned out outpatient immediately following the cysto while still in the chair.

This morning the process repeated (now the second re-occurrence). We are still awaiting the results of the biopsy and tomorrow I will go for a C scan.
My doc is suggesting a 6 wk course of mitomycin. If the biopsy comes back positive.
It seems like there is a higher success rate (lower re-occurrance) with BCG rather than mitomycin. Has anyone else gone this route?
If so, what can I expect?

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