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BCG and Cystitis Cystica

3 years 1 day ago #51815 by Mike M
You're right, the CIS could just be persistent, not recurrent. Not sure in my case what that means in terms of treatment decisions.

And will keep fingers crossed that you never have a recurrence! Thanks again Sara Anne.

Best,
-Mike

12/15 - Diagnosed Ta HG, 1.5cm Pap, Focal CIS
3/16 - Began BCG following NCCN and SWOG guidelines
2/19 - Ta HG recurrence and CIS/Ta HG in right kidney/ureter
2/19 - Nephroureterectomy to remove right kidney/ureter
6/19 - BCG x 30 completed

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3 years 1 day ago #51814 by sara.anne
No, the cystitis shouldn't have a big impact. You already have had some BCG and, if the cystitis is any indication, it is doing SOMETHING. Over the course of the 2 years that I was doing the BCG I was put off for a week or so several times for either cystitis or UTI's.

And no, I have not had a recurrence of CIS...keeping fingers crossed.
And yours may NOT be a recurrence...just still a bit there.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: Mike M

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3 years 1 day ago - 3 years 1 day ago #51813 by Mike M
Thanks Sara Anne,
Since I continue to have CIS, was hoping to get the ball rolling with either a second 6-wk BCG induction or beginning 3-wk BCG maintenance, and didn't know if the cystitis delay would be a huge impact. Did you have any CIS recurrence?
- Mike

12/15 - Diagnosed Ta HG, 1.5cm Pap, Focal CIS
3/16 - Began BCG following NCCN and SWOG guidelines
2/19 - Ta HG recurrence and CIS/Ta HG in right kidney/ureter
2/19 - Nephroureterectomy to remove right kidney/ureter
6/19 - BCG x 30 completed

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3 years 1 day ago #51812 by sara.anne
It may very well be, Mike, that the cystitis is caused by BCG. If so, they won't give you more BCG until this is healed....doesn't take long.
Several times I had to wait a week in between treatments due to BCG-cystitis.


Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator
The following user(s) said Thank You: Mike M

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3 years 1 day ago #51811 by Mike M
Hello Friends,
Recently received multi-biopsy path report showing one tissue sample with Cystitis Cystica. Suspect this may be result of 6-wk BCG induction. Was wondering if further BCG treatment is usually given with Cystitis or delayed? One other biopsy revealed "focal" CIS which I presume means one spot only. Meet with my Uro next week to discuss path report and way ahead. Am hoping to complete at least one 3-wk maintenance BCG course before the next Cysto. Thanks.

12/15 - Diagnosed Ta HG, 1.5cm Pap, Focal CIS
3/16 - Began BCG following NCCN and SWOG guidelines
2/19 - Ta HG recurrence and CIS/Ta HG in right kidney/ureter
2/19 - Nephroureterectomy to remove right kidney/ureter
6/19 - BCG x 30 completed

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