So glad you got through the surgery and doing really well. Hope things continue as well going forward. I am just beginning this journey, so I check the board nearly everyday and it gives me so much hope to hear everyone's story.
Hello All, just a quick follow up- I had the RC 8/1/16, with the DaVinci, released from hospital 8/6/16. I have an ileal conduit. So I have a ostomy pouch over my stoma. I have stents in place as a bypass until the stoma heals. Seeing surgeon 9/7/16. I must say I am surprised at how well it has gone for me. No leakage yet. I have a home nurse come every 4 or 5 days to help/ teach how to change bag, a 2 part hollister. After stent are out I may look at different, simpler systems but this is working now and I'm not changing! Stoma is healing well. After reading some other posts I must stress the importance of using your adhesive remover to get the old rings off and using skin prep to attach new gummy and ring. I shower with bag on and don't use anything like soap in the immediate area of the bag and rings.
I feel pretty good, didn't expect digestion problems though I should have.
Not much time has passed but I think things are going to be ok, at least it doesn't hurt when I urinate.
Thanks for everyone's input
Here is the most recent summary from the National Cancer Institute on clinical trials for non-muscle invasive bladder cancer.
Yes, there are some very early ones using pd1 inhibitors, but these are very early. In addition, early clinical trials are not usually available to patients with other medical issues.
If anyone is interested in exploring such clinical trials, I suggest that you contact
Dr. P. Agarwal
at the Center for Cancer Research, National Cancer Institute, NIH
who can give you contacts for the most recent information.
Clinical trials are NOT for everyone, so you need to do extensive research to see if one is right for you.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society