Welcome to our "club" which I know you didn't want to join! You are facing a lot, all at the same time. Your topic "title" says "Bladder cancer secondary to Leukemia." I assume you didn't quite mean that....bladder cancer is NOT an extension of CLL. Some of us unlucky types do get other cancers...breast cancer was my first, bladder cancer the second, and the latest is malignant melanoma. There probably is a weakness somewhere in my immune system, but no one knows.
Also personally know a bit about CLL. My dear friend had it....was also on "watch and wait".....and was in a clinical trial of the natural history of CLL at the National Institutes of Health and I accompanied him there many times. His primary complaint was FATIGUE. I really do understand where you are coming from.
As for your questions, I do know that blood counts can vary all over, but this is really a question only your CLL doc can answer. The other symptoms can arise after a TURB and generally disappear fairly soon.
Has the urologist discussed a treatment plan with you for the bladder cancer?
MD Anderson is a great place to be.
Really wishing you all the best.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
I was diagnosed in 2011 with CLL Leukemia. I spent the next two years on what is called "Watch & wait". They found out that life expectancy is longer if they wait for treatment until necessary.
I went to MD Anderson in Houston. They are one of the nations top cancer centers in the world. When I walked in, Dec 2012, I could hardly walk 20 feet, and my WBC was 196,000. My bone morrow was so full of CLL it was producing no red blood cells. They got my body again creating red blood cells, all of my CBC items were out of range. Then they put me on Ibrutinib, an oral trial drug. My last visit showed almost all of my CBC counts were in range.
Every six months I have a full body CT scan, and about a 15 months ago it came back as a bladder wall thickening, 11 months ago it suspected there was a problem in my bladder, and 4 moths ago came back as a possible tumor.
10 days ago I had a TURBT to remove the tumor, and it showed Noninvasive high grade papillary urothelial carcinoma. From what I have researched I am lucky to catch the bladder cancer early, with no deep muscle abnormality.
Now for my questions that someone might know the answer:
1. I need my gall bladder removed When I get my platelet count up. The day before the TURBT my platelet count was 95,000, and after it was 87,000. Is a drop like this normal ?
2. I ran a small fever,(under 100.4)for 9 days, with night sweats. It finally stopped yesterday. Is this normal ?
3. Yesterday my urine turned very dark at times, not bloody. Is this normal ?
I guess since I have multiple issues, and multiple doctors, I am trying to determine what issues might be normal for after a TURBT