Beginning BCG

7 years 9 months ago - 7 years 9 months ago #51538 by Jay
Replied by Jay on topic Beginning BCG
No urgency or burning, I want that type of BCG! I didn't have fluish or sore throat. Starting my 3rd or 4th (can't remember as time flies) 3 week treatment in a couple weeks. Looking and not looking forward to it, mixed feelings. I'm sure when they tell me I'll have BCG every 6 months I'll wonder about that. Hope your next treatments go well, it's a great support group here!!! Jay

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7 years 9 months ago - 7 years 9 months ago #51537 by Jay
Replied by Jay on topic Beginning BCG
W

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7 years 9 months ago #51536 by 88keys
Replied by 88keys on topic Beginning BCG
Thanks for your reply last week. It made me feel a lot better. This morning I did not have any coffee and really only miniscule bits of liquid--sip of water for medications and milk on my cereal. Also the nurse suggested I take an oxybutynin before my treatment. I had to go about 10:45 when my target time was 11. So back to about the same time for my 2nd treatment. The first I could hold the full 2 hours. So now only 2 more to go. I find this support network very helpful.

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7 years 9 months ago #51530 by Jfoutz
Replied by Jfoutz on topic Beginning BCG
Had my first BCG last Friday and the only symptoms I had was a little fluish, sore throat and fever at 101.. I took one Motrin and fever was down in 15 minutes. I hope they are all that easy but that may be a little optimistic.

Janice


5/26/16 TURBT 2.5x2.5x2cm TA HG,
6/20/16 cystoscopy NED
7/15/16 start BCG

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 9 months ago #51492 by Jfoutz
Replied by Jfoutz on topic Beginning BCG
Thank you Lillian! So glad all is going well with you. My first BCG is this Friday so I will update after I have a few. Thanks to this board I'm not very nervous about starting. Thanks again for your post.

Janice

5/26/16 TURBT 2.5x2.5x2cm TA HG, 6/20/16 cystoscopy NED, 7/15/16 start BCG

Hematuria 4/2016
TURBT 5/2016
BCGx6 7/2016
Reoccurrence & TURBT 2/2017
BCGx6 4/2017
BCGx3 7/2017
TURBT 10/2017
Gemcitabine X6 12/2017
Cytology negative 4/2018
Cytology negative 8/2018

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7 years 9 months ago #51486 by sara.anne
Replied by sara.anne on topic Beginning BCG
There is no "magic" time for holding BCG. We just do the best we can with 2 hours sort of arbitrarily set at the maximum ideal. You are doing fine!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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