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Beginning BCG

1 year 10 months ago #52714 by Jay
mbmccauley: That's all you can do, keep those fingers crossed. I'm starting my 3rd year now, my first round of 3 weeks with a 6 month break starting in March, then it's finger crossing time in April. Wishing you and everyone else the best! Jay

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1 year 10 months ago #52712 by mbmccauley
Completed first BCG regiment 1/31/17. Second cystoscopy scheduled 3/20/17. Fingers crossed

8/9/16: 2cm tumor found on CT
8/10/16: cystoscopy
8/18/16: TURBT; HG Non-Invasive
9/29/16: 2nd TURBT clear
Completed first BCG regimen: 1/31/17

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1 year 10 months ago #52680 by dtat60
I know this probably sounds strange but "Yahoo!"!!! I just had my 4th BCG treatment today and I'm finally feeling some side affects......burning in my bladder and a little more burning when I urinate. I'm so hoping that means it is working. I never thought I would wish for something like that just last year. You never know what's coming to get ya!

Peace and Love, Dave

08/16 Blood in Urine;09/16 CT Scan, RPG, Cysto;10/16 TURBT;12/08 BL TURBT;01/17 6X BCG;05/17 NED, 3X BCG, 9/17 NED, 3X BCG,1/18 NED, 3X BCG,7/18 NED, 3X BCG

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1 year 11 months ago #52557 by Jack R
MB

Lets hope that the 2 hour "cath in" policy is for the first BCG treatment only. My very first BCG I was told to stay in the waiting room for an hour and then I could leave after checking out with the desk - concern was a reaction to BCG.

I have only come across such a procedure for people who having problem holding the BCG in for 2 hours due to other urinary issues.

I'm not sure anyone enjoys the cath, but it is what it is, and soon you will be a pro at relaxing the right muscles (muscles you never knew you had) and easing the procedure. Its the overnight cath the crawls into my mind and wont go away.

Hang in there, you are on the mend,

Best
Jack

What's with this Bleeding ? 6/2015
DX: HG Papillary & CIS
3 Years and 30 BCG/BCG+Inf
T0 CIS comes back.
BC clear as of 5/17 !
RCC found in my one (only) kidney 10/17
Begin Chemo; Cisplatin and Gemzar
8/18 begin Chemo , round 3
Begin year 4 with cis T0

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1 year 11 months ago #52556 by heather79
BCG is very doable. I'm starting my second cycle next week and while I can't say I'm looking forward to it, I'm not filled with dread. I agree with the others, water and chicken soup/broth after instillation does wonders. I always get a huge thing of wonton soup if that's your thing, works great for me.

Heather
Dx 5/25/2016, First cysto and TURBT 5/23/2016, 2nd cysto and TURBT 6/20/2016, Original tumor size (by CT): 7.3 cm x 4.8 cm x 4.8 cm, BCG 8/31/2016-10/12/2016,
Cysto 11/15/2016: Recurrence :(, TURBT (#3) 12/5/2016, BCG x 3 weeks, off 1 week x 1 year (end Jan 2018)
Cysto 4/5/17: NED!!

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1 year 11 months ago - 1 year 11 months ago #52555 by mbmccauley
Thanks. I'm getting my treatments at the VA here in Tucson. The policy here is to remain in the treatment room with the cath in for two hours, then they drain and remove the cath. I don't get to have the BCG placed into the bladder then remove the catheter and go home. Wish they did it that way.

8/9/16: 2cm tumor found on CT
8/10/16: cystoscopy
8/18/16: TURBT; HG Non-Invasive
9/29/16: 2nd TURBT clear
Completed first BCG regimen: 1/31/17

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