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After BCG... recurrence

3 years 10 months ago #48930 by sara.anne
BCG is generally considered to be more effective. Mitomycin is used either when someone has serious side effects and cannot take BCG or when BCG is unavailable.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 years 10 months ago #48929 by gchang817
Just trying to get some opinions. I was able to locate a treatment center locally that has bcg. Would it be better to try mitomycin (MMC) or go in for a second round of bcg?

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3 years 10 months ago #48924 by gchang817
The pathology results from the TURBT came in, Non-Invasive Urothelial Carcinoma - High Grade Papillary. Local Invasion not identified. Muscularis propria is not identified. Benign prostatic tissue identified in a separate tissue fgragment.

So would I be correct in assuming this is not CIS (because it is papillary). The tumor/growth was rather small, the Dr. said 3-4mm at the bast of the bladder (bladder neck). Total sample was .5cm. I am wondering if the sample was from several parts of the bladder or just the tumor, there was some irritation in the wall of the bladder during cystoscopy and thickened bladder wall in CT. Will consult with the doctor, but wanted to understand a bit more as I formulate questions.

He is being treated at Sloan Kettering, the BCG shortage is effecting them, and a round of mitomycin is being recommended.

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3 years 11 months ago #48788 by gchang817
Thank you for the kind words. This isn't my first time taking care of a loved one who is dealing with cancer. I guess I always have a few things I wish I did different.

Through the 5 recurrences, what has the treatments been? How many BCG's? How many TURBT's?

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3 years 11 months ago #48782 by sara.anne
UTI's are not uncommon when you are undergoing treatments such as BCG or having frequesnt exams. Several times during my BCG treatments we had to take a week off because of a UTI. I seriously doubt that anything that your family member had any relation to the infection.

Delaying a BCG treatment happens quite often...either due to UTI or to irritation from the BCG and it does not affect the results at all,.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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3 years 11 months ago #48780 by designer1
I felt like I was writing what I was reading here. My 82 year old family member has had the removal of a tumor and began treatments such as you wrote in your topi here. Well just today during treatment number 5 we learned he had a bit uti. This is so unbelievable because he looks great, been gardening,eats well and then this. Naturally it delays the end of this (apparent) round of six treatment deal.
I thought it unusual that the Urologist was looking at us strangely. That gave us a weird feeling. The only change from last week was the technician using the catheter to remove urine and instill the solution. Sanitary needs have been addressed with great care and detail. I wonder if wearing dark underwear or even those "Depends" could cause the bacteria to spread. What do you think. I hope no one minds me jumping on this topic here but I had no idea that there might be a long long line of instilations. I guess I should take every tuesday off from work. Is this unusual for instillations to work and then a uti appear? Thanks.

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