For my last TURBT Oct. 27th on my way into the operating room I asked the doctor to make sure he had gotten a muscle sample. Because I had read this article the previous week. Now do I know if he did I'm not sure would the slides state that this portion was muscle?
I know that you are not doctors but I respect your opinion. Im having a difficult time not sure what to do. I did read an article that stated if it's less than 5%high grade, you treat it as low grade. But it didn't take into consideration any other factors, such as recurrence, finding a new tumor in a different area. Do you know if it is low grade tumor, isn't slow growing and recurrence usually doesn't happen within the first two years?
He pretty much said expect another one in Feb.
The only NCI in Florida is Moffitt guess I will make an appointment Monday.
Anne, I may have been similar 6.5 years ago as my URO was stunned with my biopsy after his cystoscope. He said what I had used to be grade 2 but, most now grade 1 or 3 and as I had some some high grade cells he immediately put be on BCG (he studied under one of the pioneers-Dr. Lamm). I second Sara Anne that a second opinion might be in order with a "few" high grade cells found. You want someone that sees a lot of BC!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.