AS the 27th Draws Near

9 years 4 months ago #47424 by sara.anne
Replied by sara.anne on topic AS the 27th Draws Near
Anne, as many of us say over and over we are not doctors. So our advice is just about worth what you pay for it! However, the "high grade" part would concern me. Have you considering getting a second opinion on your treatment from a place that specializes in bladder cancer? Yes, Hopkins confirmed the pathology...which is important...but I would wonder why your urologist is taking a "watch and wait" approach if there is high grade present.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

Please Log in or Create an account to join the conversation.

9 years 4 months ago #47422 by AnneH
Replied by AnneH on topic AS the 27th Draws Near
Results after meeting with my Doctor.

Doctor said it's the same grade as the one from February grade two. I stated that is no longer used, it's either high or low..he said okay it's low. Asked what are our next steps, he said do nothing until your three month cystoscope, slated for February. I stated the BCG didn't work he said we don't know that to be true, it might have progressed without it. Then why wouldn't we continue with BCG? He than proceeded to say he or I shouldn't be surprised if another tumor was found in three months.

Based on his response I sent my slides to John Hopkins, keep in mind they only had slides, didn't know size or that I have had recurrence within first year of diagnosis and had BCG for six weeks.


1. Bladder Tumor resection
A, Benign Urothelium and underlying Stroma.
B. Non-invasive low grade papillary urothelial carcinoma with focal<5% Non invasive high grade papillary urothelial carcinoma.

Note the significance of a very minor component of high grade tumor in an otherwise lower grade lesion is of unknown prognostic significance.

That is what I got, so I'm assuming that my diagnosis from my urologist is correct. I'm hoping someone out there can confirm this.

Thank you everyone..

Please Log in or Create an account to join the conversation.

9 years 4 months ago #47324 by pemquid
Replied by pemquid on topic AS the 27th Draws Near
Glad for the good news Anne!

(another)Ann

Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

Please Log in or Create an account to join the conversation.

9 years 4 months ago #47322 by carol58
Replied by carol58 on topic AS the 27th Draws Near
Wow Anne,

I appreciate you posting this! I did not know any of this was possible. I will definitely ask my doctor about this and have a few more questions to ask at my next cysto in January. This is truly scarey. My family wants me to have a second opinion anyway.

Thanks again Anne,

Carol58

Please Log in or Create an account to join the conversation.

9 years 4 months ago #47321 by fighterm
Replied by fighterm on topic AS the 27th Draws Near
Thank you Anne for the paper. I am new to the bladder cancer. I am scheduled to have the bladder biopsy on Nov. 10, so I will ask my uro doc to take some muscle. I have a small mass in the bladder that can be tcc or lymphoma. I wish it to be lymphoma, as I am treating it right now. I don't want to have a second cancer. Is this the second recurrence of your bladder cancer?

Please Log in or Create an account to join the conversation.

9 years 4 months ago #47316 by AnneH

Please Log in or Create an account to join the conversation.

Moderators: Cynthiaeddieksara.anne