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BCG shortage?!

4 years 11 months ago #46966 by sheeter262
I have been through 4 treatments and was told i would need to postpone the rest of my treatments, I went out and used all resources to try to find more. this seems almost unethical as the demand has not changed much from year to year.

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4 years 11 months ago #46889 by Cynthia
We have received word from Merck that the manufacturing problem with BCG is being worked on and they project that shipments should resume in October if not late September. We are waiting for more information and will pass it on as we get it.

Cynthia Kinsella
T2 g3 CIS 8/04
Clinical Trial
Chemotherapy & Radiation 10/04-12/04
Chemotherapy 3/05-5/05
BCG 9/05-1-06
RC w/umbilical Indiana pouch 5/06
Left Nephrectomy 1/09
President American Bladder Cancer Society

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4 years 11 months ago #46888 by slocapo
I went into Boston for my 4th treatment today… they told me they have pulled there overage in another hospital they supply - keeping enough for the treatments on going.. So BWH has enough now to cover us… They told me I have next weeks supply but if they do run out I would be okay going without my 6th.

They said the FDA… had a bad batch…. and destroyed it. interesting…. hope what I had done is okay…

5-12 TURB
5-13 TURB
11-13 TURB
1-14 BCG
7-14 TURB
8-14 BCG
12-14 TURB
1-15 Cauterized for clotting
2-15 Removal of Right Kidney and Lymph node

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4 years 11 months ago #46883 by Dingaroo2825
Gina - just went for my 4th BCG treatment this morning and I was told that this was the last of the doctors supply of BCG. There is a shortage of, its nationwide. And, no one know why. BCG is made by Merk. My nurse said she had heard of an October return. My doctor advised me to continue using another medicine. However. you can't just continue on. Even though I have had four BCG's with two to go, I can't have just two more of the other medicine and call it complete. Next week I have to start the first of 6 weekly treatments with the new stuff. This protocol is strongly suggested by the urologists at Dartmouth Hitchcock Hospital in N.H.

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4 years 11 months ago #46880 by slocapo
I have 3 more to go in Boston… I go back in on Tuesday for #4 I will have to ask… seems strange

5-12 TURB
5-13 TURB
11-13 TURB
1-14 BCG
7-14 TURB
8-14 BCG
12-14 TURB
1-15 Cauterized for clotting
2-15 Removal of Right Kidney and Lymph node

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4 years 11 months ago #46879 by sara.anne
It is a bit ridiculous, Alan. However, I believe that there is only one supplier and it is a biologic. Sometimes the bugs just do not behave!!! There should be more than one source so that a glitch in the fermentation process doesn't halt the supply entirely. However, compared to Viagra, it isn't a big money maker so
you know what that means.

SA

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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