5 years 5 months ago - 5 years 5 months ago#46825by razorback
This is my first activity on this forum in two years. Thanks to all of those I communicated with previously and hope all is well with you and those active here since my absence. I have just finished my 30 month treatments, no recurrences. Next will be a Cysto in late Oct in operating room as I know have a striction and cam will not comfortably insert, will also have CT at that time.
I had a rough go in several of my treatments with INTENSE bladder spasms, passing blood/clots lasting as long as two weeks without sleep due to inability to empty more than an ounce or two at a time with constant urgency feeling, ranging from...feeling like really need to go to...wont make it in time to bathroom. Had 24-36 hours of light flu like feeling and light ice cream headache with all my treatments.
I believe some of the striction prob is scar tissue caused by bad nurse technique. I had a change of Dr. 2/3 through inheriting a new Dr. and nurses.