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So far so good, no recurrences 2 1/2 years

5 years 5 months ago #46828 by Flamenco.
Great that you have got through all your treatments, even though it sounds as if some have ben quite traumatic. Here·s wishing you good luck with your next checks,

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5 years 5 months ago - 5 years 5 months ago #46825 by razorback
Hello All,

This is my first activity on this forum in two years. Thanks to all of those I communicated with previously and hope all is well with you and those active here since my absence. I have just finished my 30 month treatments, no recurrences. Next will be a Cysto in late Oct in operating room as I know have a striction and cam will not comfortably insert, will also have CT at that time.

I had a rough go in several of my treatments with INTENSE bladder spasms, passing blood/clots lasting as long as two weeks without sleep due to inability to empty more than an ounce or two at a time with constant urgency feeling, ranging from...feeling like really need to go to...wont make it in time to bathroom. Had 24-36 hours of light flu like feeling and light ice cream headache with all my treatments.

I believe some of the striction prob is scar tissue caused by bad nurse technique. I had a change of Dr. 2/3 through inheriting a new Dr. and nurses.



T1HG Non-Invasive CIS---04/12
2 RESEC'S 5/12, 7/12
30 months BCG, Last maint yesterday

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