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Late Cystoscopy

9 years 6 months ago #47173 by AnneH
Replied by AnneH on topic Late Cystoscopy
Sara Anne, thank you for helping me to focus, and get me back on track. After leaving the Doctor's office first thing I did was post my results. I was certain that those on this forum what understand what I was feeling. My family is very supportive, but the they would all be very upset (yes, my husband cried) and that would only enhance what I was feeling.

Can't help but think if only my doctor would have given me maintenance dosage of BCG after my first six, it would not have returned. I did ask him if it was necessary and his response was no.

Enjoy your weekend!

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9 years 6 months ago #47169 by sara.anne
Replied by sara.anne on topic Late Cystoscopy
Anne, just stop and take a very deep breath! One thing we DO know about bladder cancer is that it tends to come back, so this is not unusual. There are people on this forum who have had it return...it was removed and they received more BCG treatments, and it has not come back. If it does return again? There are still life-saving options available.

You can conquer this!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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9 years 6 months ago #47167 by AnneH
Replied by AnneH on topic Late Cystoscopy
Hello,

Had my cystoscopy yesterday, the one that should have been done Aug. 13, got the bad news a new tumor has been found. I'm scheduled for removal Oct. 17th, the Doctor said its in a new area the size of a nickle. He stated its growing out which is good, but he did state that it grow very quickly. My last cystoscopy and biopsy was in May after six BCG treatments and was all clear.

I'm really upset, angry and very frightened.

Regards,

Anne

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9 years 8 months ago #46865 by GKLINE
Replied by GKLINE on topic Late Cystoscopy
Just wanted to ad my 2 cents.
three weeks OK
Three Months.... NOT OK

George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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9 years 8 months ago #46859 by Alan
Replied by Alan on topic Late Cystoscopy
I second Sara Anne's comment. 3 weeks without shouldn't be a biggie. 3 months more would be.
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 8 months ago #46815 by AnneH
Replied by AnneH on topic Late Cystoscopy
Hi Sara Anne,

I just wanted to thank you for taking the time to reply so promptly to my problem. Thank you for your kind and supportive words, I really do appreciate them. I was very concerned that I would be doing significant damage by not going on the scheduled time.

Regards,

Anne

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