There are no guarantees, but BCG has an excellent track record. Since the only real alternative when it fails is radical cystectomy, it makes sense to give it a try. That being said, after my second recurrence of CIS, we tried BCG + Interferon which was immediately followed by recurrence of high grade tumors. I opted for the radical cystectomy and I don't miss my bladder 1 bit.
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...
Gina , Mike would be the first one on here saying your concerns and feelings are most certainly important . Who said you have to be strong all the time for your family. I can understand that for your kids , but for the rest of those around you why don't you have a day once in awhile that is a "lift up Gina day.
Tell them they get to be strong for you on that day !
Sometimes we need to bring our minds back under our control. We really do have a choice , do we want to feed the monster of despair and hopelessness, ( it will get bigger !) or do we want to feed the monster of laughter and sunlight in our lives ? I know that if I don't take control of my thoughts they can get pretty low. I try to be around people that laugh a lot and see hope in living .
My husband wakes up and says " Let the adventure begin " And really sometimes I'd like to slug him ! lol. But his attitude is catching, it puts a smile on my face. He also has been thru cancer and chemo, it is just he chooses life and laughter. rather than despair.
I hope when the monster is getting to big for you that you can let the sunlight back in to beat it back. Have faith life really is good. Rocky
5 years 1 month ago - 5 years 1 month ago#46221by Alan
You belong to as George says "our club" for venting, questions etc. Also, as he would say, sorry that any of us are here but, we make do with where we are! You are not bothering anyone here-we all in this journey together! I have learned so much from each and everyone!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
Last edit: 5 years 1 month ago by Alan. Reason: clarity
I have kept a positive attitude for my family and friends...although deep in my mind I have many unanswered questions which lead to my negative thoughts...Sorry to vent here...perhaps I don't belong! After reading "Mike's" post my concerns are nothing...in fact, I should be happy with my progress thus far...for me, cancer has brought a lonliness like I've never experienced before...the need to 'keep strong' for my husband and children doesn't allow me the luxury of actually facing my negative feelings...if only for a minute. sigh...This site is awesome and so are you!