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6 year cysto good, cytology good, CT scan Questioa

4 years 1 week ago #48784 by Joey
So to recap I was dx in November 2007 with low grade TA cancer, some mixed opinions if I had a recurrence of focal CIS in April 2008. Had 36 BCG treatments since then and all clears. Had CT scan February 2014 which showed ureter wall thickening and the distal ureter.

Ureter cytology wash at that time showed "can't rule out high grade cancer".

Since then had cysto in March, June, October 2014 and January & March 2015 with clear findings and cytology negative plus a negative fish test in October.

Also ureterscopy in March, June 2014 and January and March 2015 shows no visible signs of tumor, however the renal pelvis brushing cytology of 03/12/15 shows again can't rule out high grade cancer.

CT scan shows no change from October 2014 to today, May 12, 2015 with same wall thickening and stranding.

The suggestion is to have my ureter and kidney removed as uro believes with a history of focal CIS in 2008 cancer can be in lining of ureter, thus the findings. Recent cytology is as follows:

1) URINARY WASH: LEFT RENAL PELVIS:

FINAL DIAGNOSIS: ATYPICAL UROTHELIAL CELLS, CANNOT EXCLUDE HIGH-GRADEUROTHELIAL CARCINOMA. SEE NOTE.

URINE CHARACTERISTICS: ATYPICAL TISSUE FRAGMENTS. ACUTE INFLAMMATION.

NOTE: THE CYTOLOGY SLIDE SHOWS NUMEROUS ATYPICAL UROTHELIAL CELLS BOTH IN CLUSTERS AND SINGLY, STRONGLY SUSPICIOUS FOR CARCINOMA.
CLINICAL CORRELATION IS RECOMMENDED. THIS CASE WAS REVIEWED AT THE DAILY INTRADEPARTMENTAL QA CONFERENCE.

I am leaning towards the recommendation as if there is high grade cancer, having it removed provides best chance for a cure. Otherwise every three months wondering over and over again is it back and now aggressive. At least now I know no seen tumor,

Thanks,

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4 years 3 months ago #48211 by Nix
Fingers, toes and eyes crossed

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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4 years 3 months ago #48210 by Joey
Nix, thanks, I should hear something today. It will be 2 weeks on Wednesday so you think if there was something significant I would have received a call by now. But we will see. Eager to get the stent out.

Joey

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4 years 3 months ago #48175 by jimswife
Great news for the 6 yr mark. I am wishing and hoping that all goes well on the next phase of the testing. Scarring is not uncommon but as we all know it's important to follow up. Best to you, Joey

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4 years 3 months ago #48172 by Nix
Oh Joey, I am so sorry you have had to go through all this. We have been on our journey together they past 7 years, so I am sending positive thoughts and prayers your way, and we can continue our journey for years in the future:)


Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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4 years 3 months ago #48171 by Joey
To continue my updates, I have had 5 Cystos since last February with 3 ureterscopes for a filling defect that has showed up in a CT scan in 02/14 and 10/14 in the left distal ureter. By low grade bladder tumnor was located around the ureter. The CT scans from 02/14 to 10/14 showed this area has remained stable with little to no change. All cytology for each procedure and one fish test done in October have been negative. I just had the last cysto and ureterscope on 01/20 with biopsy taken at that site in the ureter. Uro stated did not look like cancer but there is something under the lining of the distal ureter. Waiting for results this week.

Joey

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