I am going on my 4th visit this coming Tuesday. I have found that Wed is somewhat like a small pickup hit me but really nothing major. I do take the day off so I don't wear myself out. I have no bleeding or burning. I have felt the past few days a … lets call it feels like I stretched a muscle in my groin area… I think its my bladder saying …hey.. done with this… lets get better…. Pretty much everything I read on this site is spot on and I wish you the best of health!
1-15 Cauterized for clotting
2-15 Removal of Right Kidney and Lymph node
6 years 4 months ago - 6 years 4 months ago#45784by Moonerj
I am sure you are aware that the side effects of BCG varies by patient, therefore I can only share what I experienced with the treatments. I did have 3 sets of 6 weekly treatments and 12 maintenance treatments. I will share my experience with my first set of 6 weekly BCG treatments.
All my treatments were on a Friday afternoon and by Sunday morning I was back to normal. Experienced urgency and some burning while urinating.
I went home immediately after each treatment, only 1/2 hour drive from hospital.
After my 6th treatment I was fine and back to normal with-in 2 days.
My cysto was 6 weeks after the last treatment, doc said 6 weeks because BCG usually inflames bladder so he wanted the bladder to be as free as possible from inflammation.
I believe if Greg does get an all clear he would then begin BCG maintenance.
I wish him all the best with the treatments,
BCG = Bladder Cancer Gone
TA Grade 1
30 BCG Treatments
Cancer Free since Nov 2007
So Greg hoping to start BCG asap. The answers are probably here somewhere but have some questions about what to expect. He knows about the general effects - fatigue, need to urinate more etc.
- How soon after each session are you back to `normal`? So life can go on pretty much as usual between the weekly sessions?
- Do you have to stay at the hospital for the 2hrs while you hold it in? What if you can`t? Greg has cystitises so goes OFTEN, due to pain.
- After the last BCG & before the scope how do you feel? He has a big yearly event he really doesnt want to miss, but I told him he may not feel up to it. - - Doc has said the scope will be 6-7 wks after the final BCG. That seems a long time. Is this normal?
- If the T1 is back its cystectomy. If CIS only, its option of cystectomy or BCG again. If clear, its maintenance. is this usual?
Thankyou SaraAnne - will be seeing our GP next week to insist on getting a second opinion about the need for RC - it just seems so final.