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Cysto today

4 years 10 months ago #45761 by Flamenco.
Great news Nicke! Glad the mitomycin seems to be doing the trick.I had treatment with it in 2006, and touch wood am still here to tell the tale.
Diane
The following user(s) said Thank You: Nicke

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4 years 10 months ago #45760 by Nicke
Thanks,
Yes, I have got intravesical therapy with Mitomycin once a week for eight weeks. The procedure is the same as with BCG therapy. Hold it for two hours and then pee it out. I will continue with maintenance therapy once a month.

Mitomycin is the first choice therapy for low and intermediate risk superficial bladder cancer in Sweden. I had a long discussion with my doctor about having Mitomycin or BCG therapy. Mitomycin was what he recommended.

Niklas

12-12 Diagnosis
13-1 Turb TAG1
13-5 Turb Ta low grade, multiple
13-10 Turb TaG2, multiple
13-11 Mitomycin 8 weeks + 6 month
15-01 Turb

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4 years 10 months ago #45759 by Knut
This was nice to hear, Nicke.

You are lucky that they found it early and that they follow you up closely.

Please let us know how things develops.

All the best to you.

Sincerly,
Knut

Diagnozed first time April 1th 2004.
Muscle invasive, T3A.
Radical Cystectomy June 29th 2004.
Illeal conduit. Bag on my stommack.

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4 years 10 months ago #45758 by rbmc
Congrats for the tumor free scope. A ray of hope can sure change your attitude. You say Mitomycin is once a month. Infused directly into the bladder? You have to wait, and/or expel it? Is 8 weeks a normal plan?
I did the BCG for 6 weeks. I don't know yours, so just being nosey.

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4 years 10 months ago #45750 by DougG
Nicke,

Congratulations on the all clear! Always wonderful to hear.

Anita

Anita
Forum Moderator
Caregiver

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4 years 10 months ago #45748 by Nicke
Thank you Chatherine,
In fact this is the first step in the right direction. I am still suffering from the treatment (the last one four weeks ago), but as long as the treatment is working I can stand it.

Thank you for the hug. I have already got one today. On my way out from the hospital I did meet a female friend. She didn´t know about my cancer diagnosis, but we had a long talk about heath issues. And yes, she also gave me a hug. Both hugs felt great!

Niklas

12-12 Diagnosis
13-1 Turb TAG1
13-5 Turb Ta low grade, multiple
13-10 Turb TaG2, multiple
13-11 Mitomycin 8 weeks + 6 month
15-01 Turb

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