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Results of the BIG 12

10 years 3 months ago #45674 by CatherineH
Replied by CatherineH on topic Results of the BIG 12
I did some reading on your new diagnosis of Myleofibrosis. I didn't understand some of what I read except that as you pointed out, it is rare. I do hope your doctors can find a protocol that will help you and stop, or slow, any progression.

Come back anytime to check in and give us an update (when you can take a break from working on your tan!) But seriously... take care!
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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10 years 3 months ago #45663 by GKLINE
Replied by GKLINE on topic Results of the BIG 12
Thanks for the good news!

Sorry for the "next" diagnosis. It seems as though Jason Robard's line in "Parenthood" is appropriate........ "It never Ends... It just never ends!"

Keep the faith...... And carry on!

George
Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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10 years 3 months ago #45652 by rbmc
Replied by rbmc on topic Results of the BIG 12
Sorry to veer off topic, but if you're interested (or knowledegable), my new diagnosis is Myleofibrosis, a rare blood disorder (cancer). Neither doctor associates it with BC, or treatments. Been tough to research and understand, so quite confused. Thanks.

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10 years 3 months ago - 10 years 3 months ago #45649 by CatherineH
Replied by CatherineH on topic Results of the BIG 12
Congrats on reaching the Big 12 mark with a clean cysto. Tense time waiting to hear those words from the doc, so that is great news.

So sorry to hear you are now dealing with another medical issue. I know the BC diagnosis and treatments have been an unpleasant roller coaster ride, and now thinking about having to go for yet another bumpy ride is disheartening. All I can say is to hang tough, ride out those depressing days, and find the best doctors you can to work with.

Please feel that you can come back here anytime for support, BC or not.
Sending you my highest hopes for the best possible outcome...
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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10 years 3 months ago #45648 by DougG
Replied by DougG on topic Results of the BIG 12
Stay away from that "Don't give a damn" hole!!!
Anita
Forum Moderator
Caregiver

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10 years 3 months ago #45645 by rbmc
Replied by rbmc on topic Results of the BIG 12
Thanks. Hope good news is an inspiration to others. Unfortunately, my new situation has me baffled, confused, and depressed. No place to turn such as the nice ABLCS people. Trying not to fall into the "Don't give a damn" hole.

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