Hello Annie.... It is soooo good to see you back in the forum with a good status update. Congrats on getting through your BCG treatments and it seems to be working for you. It is hard to believe that a year has flown by, but dividing time into 3-month chunks for those first several checkups seems to make it go faster somehow.
I'm glad you can look at this now as a "funny" story but it must have been rather alarming when it first happened, and kept repeating itself. Sounds a bit like something from the movie "Alien"!
I do hope you and the Red Wings have a stellar next year (and many beyond that), and that there are no more octopus-creatures in your future!
Best wishes... Catherine
Forum Moderator Team
TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Hey all...it's been awhile since we last spoke. I have a full year's worth of BCG treatments behind me and I am now in my first year of maintenance. Of course I have kept all of my appointments and have had biopsies with every cysto....except for once. This one time the Dr. said that he was going to do something different because he felt that the areas of the other biopsies looked a little aggravated. He said "now this may hurt a little" but it didn't hurt at all. He did a bladder sweep (my interpretation) and it seemed as though he was doing a D&C although he didn't say that. I always envision that my Dr. is fly fishing when he does the biopsies, so my mind is occupied with something creative instead of dread.
After this bladder sweep I had a bit of flecks but nothing that I was shocked to see in the toilet. Oh my goodness! About 10 days later I delivered what appeared to be a dead octopus from my urethra. I ran to the phone and tried to come up with something a little less descriptive but just as serious. "Oh don't worry, that sounds normal" Well okay I'll try to calm down. The next day the same thing happened and again I called and spoke with the nurse. 6 straight days and finally I said that I was going to move to Detroit so I could throw this thing out on the ice at Joe Louis Arena ( I am a big Detroit Red Wings fan)(the fans throw an octopus onto the ice as a tradition)Well I'm all better now and my Dr. has new, improved equipment and I can actually look at the inside of my bladder to see what he sees. It looks like the moon.
Everything else seems to be fine and there hasn't been a recurrence, so I'm glad to wish everyone the best.