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New Neobladder

7 years 1 month ago #44600 by Cady
I do check in, and I do know that I won the lottery--but Thanx for the reminder and the cheer. It's great that you can offer encouragement to others too.
I feel so jubilant and grateful. I swear even colors are more vivid!
TheCT scans showed a perforated ulcer and the treatment for that is finally working, so I have even more to celebrate.
Part of what I'm learning is that each day is precious.
I hike each day and see antelope and deer and elk and sometimes eagles! If anyone wants to take some steps with me, just send me your name and I will remember you in some wild and beautiful place.


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7 years 1 month ago #44594 by dukel
Warren, sorry I,m so late jumping in here. Most of us that have had the Neo surgery have went through what you're going through or something very close. I spent a few weeks with buyers remorse also. I just wanted you to know most all of us have gotten better. This is not an easy surgery or cancer and I know a lot about both. It sounds to me like you are handling it very well. There are going to be bumps in the road, it's just the way it is. I would like to offer you a little encouragement. I am over three years out from my Neo surgery. After the first few months, My life was pretty much back to normal. My digestive track is fine, no problem! I don't leak doing the day. I do leak a little at night sometimes, but I also drink right up till bed time. I have a sex life without any need for aids. This is just to let you know everything is possible. I know how lucky I am, and hope you are just as lucky as I have been. It can all take some time! Just hang in there and deal with it one day at a time.
Wishing you the best.

PS. Cady, If you are still following this thread. I hope you have read enough on this sight to realize you just won the lottery. Live like it!

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7 years 1 month ago #44542 by Cady
Thank you! CTscans today for something else, so another hurdle to get by but... I don't have bladder cancer! Hurrah!
It's a gorgeous day! I will make sure my celebrations are bigger and louder than my worries!
Best wishes to all--

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7 years 1 month ago #44528 by GKLINE
I LOVE the line;

You are No Longer a cancer Patient!


We Officially Reject your application to the cancer patient fraternity and sorority!
We Proudly send you out into the world as a healthy human being!

We wish you the Best of Luck and sincerely hope you Never need to post on this site as a Patient again!

However, We do have a consolation Prize for you. We would love to have you back regularly as a guest poster for the benefit of other worried and scared visitors to this site. Please visit as often as you like.

George (head cancer patient advocate cancer ass kicker)

Now! Go out and Live a GREAT LIFE!!!

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
New Man! [/size]

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7 years 1 month ago #44514 by Cady
Dear Warren and Mike,

Thank you! Since I had recurrence last January (2012) after first being dxed in October 2010, I know to be vigilant. When I was clear at the end of December, I took to exulting with a loud "yay" until I could all but feel my heart soar. I do my celebrations a bunch of times a day. I live in Wyoming where the scenery is gorgeous (as Balzac said, "The desert, you see, is everything and nothing. It is god without men." Here, the climate is called High Mountain Desert.") so I am out hiking in the mountains with my dogs for an hour or two a day. I think this helps my health and my attitude. I will remember to be grateful.
I can't tell you how comforting it has been to read your posts-- thank you for sharing your experiences. I'll be rooting for you and will be checking back to follow your healing.

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7 years 1 month ago #44510 by mmc
Congratulations Cady!

You are now not a cancer patient at all. Until proven otherwise, you are cancer free.

You still have to follow up diligently, but you are free!


Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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