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Bladder cancer at age 17 ):

5 years 1 month ago #45469 by mmc
Jeanette

Check this link as well. http://www.nccn.org/professionals/physician_gls/pdf/bladder.pdf
You will need to register but it is free to do so.

These are the NCCN treatment guidelines. It has deep detail on treatment recommendations. I'd recommend you print it out and take it to her urologist and walk through her recommended treatment to have him/her explain in more detail.
mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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5 years 1 month ago #45468 by mmc
Here is a resource for you. I saw you are in Sydney when I reread your post.

http://libguides.mq.edu.au/content.php?pid=379776&sid=3984469

Macquarie University Hospital looks to be a top notch place. Not sure if she is already seeing a doctor there.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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5 years 1 month ago #45467 by mmc
Jeanette

I'm glad you found us! We've had others from Australia on the site and I will look to see if I can find any top doctor's names from searching posts.

Depending on her diagnosis of stage and grade, the treatment path is different. If she has CIS (carcinoma in situ) then BCG is the treatment of choice. If it is low grade and non-invasive then often they just keep an eye on it with regular cystoscopies and remove it when a tumor shows up. If it is high grade then treatment must be more aggressive.

Where are you in Australia? I used to live in North Turramurra outside Sydney and I know first hand that there are some great doctors and medical facilities in Oz. I wasn't treated for bladder cancer there but I was for other things and so was my wife.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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5 years 1 month ago #45466 by Nancylhm
I just want to say I am so sorry to hear of this at such young age. My husband age 61 was diagnosed with stage 1 and they gave him 3 BCG washes . Maybe you can suggest this to your doctors for a possible idea. I do hope they will be able to help you.

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5 years 1 month ago #45465 by jeanette
I came across this website in hope of finding some information. My daughter aged 18 was diagnosed with bladder cancer in April 2013. We live in Sydney Australia and I am unable to find any information on this subject for my daughter in Australia. This cancer is very rare for a young person.

The specialist has never had a patient this young and neither has any of his colleagues. I am trying to find out if treatment for someone so young would be the same as someone who is older???

She has undergone three lots of surgery this year and I want to know if it is common for this to happen. She was diagnosed with stage one cancer. I would appreciate any information anyone give me.

Thank you

Jeanette

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5 years 9 months ago #44235 by heyimv
Wow we have a lot in common I two was diagnosed when I was 17. I was 8 months pregnet and i thought i was having a miscarrige too. If u figure out why we got it so young please let me know. thanks

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