I'm back

11 years 1 month ago #44297 by DougG
Replied by DougG on topic I'm back
Warren,

Glad to hear the good report.

Best wishes,
Anita

Anita
Forum Moderator
Caregiver

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11 years 1 month ago - 11 years 1 month ago #44296 by Alan
Replied by Alan on topic I'm back
Warren,

I always look forward to your posts. I learn so much from them. Good to read about the good report.

Alan

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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11 years 1 month ago #44295 by mmc
Replied by mmc on topic I'm back
Good news Warren! Best of luck!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 1 month ago #44294 by Nix
Replied by Nix on topic I'm back
Well that is a good report! You must be relieved, and happy with the results plus the surgery is behind you. Now you can just put all your effort to getting stronger and healing everyday.

Please keep us informed so we can followed your full recovery :) :) :)

Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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11 years 1 month ago #44293 by wsilberstein
Replied by wsilberstein on topic I'm back
Biopsies are back. There was no invasive cancer in my bladder and all lymph nodes were negative; however, there was CIS of the right distal ureter. The margins were clean so I'm cured. Of course I'm concerned that I could develop more CIS of the ureter, and since my cytologies have always be negative, I'm not sure how we'd know, but for now, I'll hope it was just an extension from the bladder since that's where the problem has always been. In any event, the fact that there was CIS in the ureter is proof positive that my BCG treatments failed. There is no question about the fact that an early cystectomy was the best and possibly life saving choice for me.
-Warren
P.S.: cautionary comment to my fellow travelers. The absence of invasive disease is not an argument against cystectomy. If you value your life more than your bladder and have recurrent high grade disease, get that sucker out before you regret your delays or equivocations.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant 5/2014
Pediatrician

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11 years 1 month ago #44287 by mmc
Replied by mmc on topic I'm back
I didn't have the suprapubic drain so mine was flushed six times a day.

I dunno....maybe duct tape or caulking around it will help. ;). ::woohoo::

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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