Hello alll, posted a couple weeks ago about my husband...had surgery for solitary 3.8 superficial bladder tumor on Dec. 28 th. today he had a ureter stent removed. Doc confirmed that tumor was low grade 1, ta. This is all good.
He said we have 2 options...monitor with cystos every 3 months for a year or do BCG and monitor. He said tumor is very unlikely to progress, but low grade tumors have high recurrence rates. My husband also has ankylosing spondylitis, an autoimmune condition. Apparently the bcg could cause this to flare? We are with an excellent uro at a large teaching hospital in Chicago. He is very conservative and said he would support either decision...bcg, or no bcg. I have been reading lots of opinions online and it seems most low grad ta tumors are not treated with bcg unless there is a recurrence. We are also concerned about the autoimmune considerations.
Any info you wise folks have would be appreciated. I am hoping someone else here may have had a similar diagnosis...one large, low grade, non invasive tumor. And does anyone else have an autoimmune disease coupled with bcg treatments