So upset

11 years 5 months ago #43530 by GKLINE
Replied by GKLINE on topic So upset
I don't know much about BCG but I wanted to also chime in and let you know that you DID NOT FAIL !!!!!!
I am surprised the staff didn't let you know how well you did.

If Mike couldn't go the full time ..... Then you know You didn't fail.

Keep at it!

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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11 years 5 months ago #43524 by Markq
Replied by Markq on topic So upset
I agree with Mike. I'm still on full dose BCG maintance every 6 months. Sometimes I can hold it for 2hrs, and sometimes I can't. I think Dr. Lamm says a half hour may be an adequate time to hold the BCG. Let your doctor know how it went at your next appointment and don't worry about not making 2 hours. If the side effects become to troublesome they can always reduce the dosage and/or prescribe some medication to lessen the effects.

47 yo, Ta G3
Diagnosed 11-24-10
BCG induction starting 12/17/10 followed by BCG maintance.

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11 years 5 months ago #43523 by mmc
Replied by mmc on topic So upset
You didn't fail! The BCG is doing its job. I couldn't hold it for two hours either. Be sure to use the bleach and take care of things at home and not risk a public restroom.

If the BCG was causing lots of pain then it was creating an immune response. That's the whole point. Make the bladder angry and the body works to battle the cancer in the bladder.

Hang in there. Not everyone can hold it that long. As long as it is doing its job, so are you! :)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 5 months ago #43522 by AASTEAPOTS
So upset was created by AASTEAPOTS
Today was my 1st bcg treatment and I couldn't hold it for 2 hours. I did it for one hour but the pain was too much I had to void. I tried to only go a little but I couldn't stop it. I feel like I somehow failed.

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