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BCG Reaction

4 years 5 months ago #46465 by raider
Sounds like you've been through a lot and still manage to have a positive outlook. I worry about the possibility of having an RC. I would opt for a Neobladder but would stress about if I would be able to manage it well.

Thanks for sharing your story

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4 years 5 months ago #46464 by wsilberstein
Most of my problems have been complications of treatment. I do have a neobladder, and did well with the surgery, but was completely incontinent afterwards. After a year without improvement, I finally had an artificial sphincter installed. 6 weeks after it was activated, it eroded into the urethra resulting in swelling and severe pain, so I had to have surgery to remove it. I've learned to roll with the punches. I haven't missed a day of work except for the surgery.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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4 years 5 months ago #46463 by raider
Wsilberdtein,

The pain I'm having is excruciating, it’s been 4 days since my last treatment and I’m in constant pain. If I do anything physical my bladder goes into spasms and the urethral pain keels me over. It’s encouraging to hear that the Miomycin was successful for you, sorry to hear that you had an RC. Did you have the Neobladder surgery? If so, how are you doing with it?

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4 years 5 months ago #46461 by wsilberstein
14 years ago I had mitomycin C instead of BCG. I remained cancer free for 10 years after that. I had BCG for my recurrences after that. The second time was hell... and it didn't work.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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4 years 5 months ago #46453 by raider
Having very bad pain after the 3rd treatment and we reduced the dose to 1/3, I called my Uro and we will skip next weeks treatment. The following week we will try 1/10 dosage but he said if I still continue to have this severe pain we will have to stop BCG.

Really!! Can my bladder be spent after 9 BCG treatments? that would suck but from reading trough some post I see that Mitomycin is an alternative treatment.

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4 years 6 months ago #46448 by Alan
Your welcome, Raider! Heck, it just sounded correct to cut the dosage and as many have said, the efficacy doesn't seem to change. The only reason why I am "tuned" into it is if I have to do it again, it will be at a reduced dosage.

Hope you are or can get back on the links soon!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.
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