Forum

× click the New Topic button to post

More BCG treatments?

6 years 5 months ago - 6 years 5 months ago #42332 by Alan
Ray,

My URO had me do 6 BCG, 6 weeks off the another 6 and that is it. His rational is there is risk in every procedure, even a simple catherization. Believe me that is true. I get a nasty bacterial infection with every cysto so he has be take antibiotics after every one.

Someone is welcome to correct me if I am wrong but, Dr. Herr at NYC Sloan does just 6 and that is it. Interestingly my URO actually had some study with Dr. Lamm years ago when he was in San Antonio (UTSA Health)so I went with his (my URO) protocol. I also changed a few habits such as not drinking carbonated drinks-we know what that does to dirty pennies if left in Coca Cola. I can't find it as the web site is gone but, I even read a medium size study that there was some evidence eliminating such drinks appeared to this action. Who really knows?

I do believe in BCG. Also, after fortunately being free 4+ yeas I am also convinced genetics, catching this beast early and treating it is the key. Just adding yet another story to this thread.

Alan

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

Please Log in or Create an account to join the conversation.

6 years 5 months ago #42305 by corkyd614
Mike,

I'll drink to that "cancer free forever" quote.

Thanks Mike

Please Log in or Create an account to join the conversation.

6 years 5 months ago #42304 by mmc
Ray,

Good to hear! I was nervous about your doc there for a second but based on this new info, it sounds like you have a really good one! :) Better safe than sorry.

If it had been high grade and even more specifically CIS, your doctor likely would not have even put the ball in your court. But as you said, even though it was low grade, it was large so going for another round is likely a good idea but not an absolute must.

Here's to "cancer free forever"! :)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

6 years 5 months ago #42303 by corkyd614
Hi Mike,

Thanks for the response and the congratulations. My urologist did give me stats that indicated I would have a 96% chance of not having a recurrence without the treatments. My cancer was low grade but he indicated the size of the tumor required me to be on the safe side and take the first six treatments. I'm going to take the next treatments because I don't want to kick myself in the butt if three months from now I have a recurrence.

I have read most of Dr. Lamm's research and feel that taking the treatments will be beneficial in keeping the other 4% at bay. That is as long as my body can take the effects of the treatments.

Thanks again for your input.

Ray

Please Log in or Create an account to join the conversation.

6 years 5 months ago #42287 by mmc
Ray,

Congrats on the all clear! I'm a bit surprised that the doc put the ball in your court on that one as well. Did he at least tell you the stats on going forward with maintenance versus not?

It is HIGHLY recommended to follow the maintenance schedule. Some things I've read made it sound almost like there isn't a whole lot of sense in getting the first round if you aren't going to follow up. I believe that was in reference to CIS specifically though.

I'd suggest searching for Dr. Lamm's protocol and reading some of his research. I am glad to hear that you've already decided to do the follow up. Grade also is relevant. I forget if you were high or low grade.

It is always better to be armed with information and your urologist ought to be one of the sources of information (but not the only one).

Hope you continue to stay all clear forever! :)

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

6 years 5 months ago #42280 by corkyd614
Mark, Catherine, Sara Anne,

Thank you for your replies and support.

I am going for the treatments but thought it was strange that my urologist put the ball in my court. I've got to admit that I do kind of like the open dialogue that we have and intend to keep it that way.

Hope you all have a great summer.

Ray

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 316 Guests 
cltyxx's Avatarcltyxx

Legend: Site Administrator Global Moderator Moderator Banned User Guest

Statistics

Total Messages: 50863 Total Sections: 1 Today Open: 1 Today Total Answer: 1
Total Subjects: 6517 Total Categories: 11 Yesterday Open: 0 Yesterday Total Answer: 2
Total Users: 7779 Latest User: Taross
Powered by Kunena Forum