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BCG with multiple tumors vs single

6 years 5 months ago #42255 by mmc
Steve,

How many we're T1?

Pleeeeeease get that second opinion at a top bladder cancer center.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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6 years 6 months ago #42197 by Joey
Steve, I have read about the BCG shortages as well as the flyer on this website, however I will start BCG #27 on Tuesday at Hopkins.

Joe

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6 years 6 months ago #42187 by CatherineH
Hello Steve... You are arming yourself with a very effective weapon--information. I laughed when I read your thought about not being smart enough to have this disease. That goes for me too. It takes so many different twists and turns that it's nearly impossible for us laypeople to comprehend much of what's out there.

I can't address any of your questions about BCG because I've never had it or read up on it. A positive outcome of all your reading and research is that you will be better prepared to meet with your doctor and discuss your particular situation.

Just wanted to reiterate that I'm sending best wishes to you and your wife.

Catherine

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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6 years 6 months ago #42185 by razorback
Hi Folks,

In my research of T1 high grade non-invasive, I have seen reports of BCG treatment success being generally lower with multiple tumors vs single, I had 7 tumors. Does anyone have any experience or know of others with multiples that can can point me towards more information that I can research regarding this. I wish I was more astute on reading and fully understanding medical articles, I often think I am not smart enough to have this disease. On average, how long do people wait after their Repeat Resection before starting BCG? Lastly, I have read in the past of shortages across the country of BCG, is there a continued problem on availability? Thanks in advance for anyone's inputs. Steve

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