Hello Steve... You are arming yourself with a very effective weapon--information. I laughed when I read your thought about not being smart enough to have this disease. That goes for me too. It takes so many different twists and turns that it's nearly impossible for us laypeople to comprehend much of what's out there.
I can't address any of your questions about BCG because I've never had it or read up on it. A positive outcome of all your reading and research is that you will be better prepared to meet with your doctor and discuss your particular situation.
Just wanted to reiterate that I'm sending best wishes to you and your wife.
Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
In my research of T1 high grade non-invasive, I have seen reports of BCG treatment success being generally lower with multiple tumors vs single, I had 7 tumors. Does anyone have any experience or know of others with multiples that can can point me towards more information that I can research regarding this. I wish I was more astute on reading and fully understanding medical articles, I often think I am not smart enough to have this disease. On average, how long do people wait after their Repeat Resection before starting BCG? Lastly, I have read in the past of shortages across the country of BCG, is there a continued problem on availability? Thanks in advance for anyone's inputs. Steve