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Recurrence of CIS. Treatment options

7 years 5 months ago #41991 by Moonerj
Hi Warren

Sorry about the recurrence after so long being cancer free. I have a friend who did have a recurrence of CIS, tried BCG, had a further recurrence and then tried Valstar. He has been cancer free 18 months now. Might be worth a try.
For sure on the 2nd opinion my friend.
All the best
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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7 years 5 months ago - 7 years 5 months ago #41944 by wsilberstein
I had a standard 6 week course of BCG. No maintenance. It was never suggested. But based on my reaction to the last BCG, I'm not sure I could have tolerated it. Treatment can sometimes be such torture cystectomy begins to seem a pleasant option.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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7 years 5 months ago #41943 by Nix
Hi Warren....long time no talk :laugh: Are you still in "maintenance" BCG? I can tell you I have had 24 total BCG treatments and I am (hopefully) coming into my 5 year mark in August. I had CIS one time 4 1/2 years ago and so far it has been effective for me.
I guess if there is a question, I would agree with Mike - go to a top doctor and weigh your options.
Nancy

Nancy S
Ta CIS
dx Ta 11/06
dx Ta CIS 10/07

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7 years 5 months ago #41942 by mmc
Warren,

I clearly misunderstood. Thought you meant he waited a year to biopsy it.
Nevermind.... :)

Still, 2nd opinion, top doctor, evaluate the options based on what they say.
I'm a "minimize risk" kind of guy so I was all set to argue with my doc in order to get an R/C even if it was only CIS again. It turned out mine was muscle invasive at that point so I didn't need to argue.

As my 2nd opinion doctor said though, if you have a recurrence of high grade, you know where things are going. Sooner, rather than later, is better for curing it before it has a chance to get into the muscle, lymph, or other areas.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 5 months ago #41941 by wsilberstein
Just to clarify: the follow up biopsies after BCG were negative. To the best of my knowledge I have not had CIS for a year. Erythema in my bladder has been an ongoing issue for 11+ years, so while I didn't think biopsy every quarter was necessary, I requested that we do biopsies if the erythema persisted 1 year.

-Warren
TaG3 + CIS 12/2000. TURB + Mitomycin C (No BCG)
Urethral stricture, urethroplasty 10/2009
CIS 11/2010 treated with BCG. CIS 5/2012 treated with BCG/interferon
T1G3 1/2013. Radical Cystectomy 3/5/2013, No invasive cancer. CIS in right ureter.
Incontinent. AUS implant 2/2014. AUS explant...

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7 years 5 months ago #41940 by Humpy
Welcome back Warren,
I'm with Mike. When I found out I had BC, I couldn't have a R/C
quick enough. I could not handle the continual agony of BCG.
You have surgery, recoup, and for the most part cancer is behind you.
Life is, as it was pre R/C. GREAT!!!!

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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