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Perplexed on all of the non treatment recurrences

7 years 7 months ago #41388 by corkyd614
Hi Sara Anne,

Thank you for the response. I am going to ask my urologist this question next week but it was rattling in my mind. I guess my thoughts were in the mind set of an ounce of prevention type.

I've read that BCG is not given sometimes for low grade tumors until recurrence and I've also read that it often given to low grade tumors if recurrence occurs or multiple low grade tumors are discovered so I was a little confused.

I was also wondering if the reluctance of giving BCG was due to the side effects it may cause.

I'm rambling but I do want to thank you and all in this group for being there for questions and advice. It is very much appreciated.

Ray

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7 years 7 months ago #41371 by sara.anne
Ray, BCG has been shown to be very effective in high grade and in CIS. It is also used when low grade recurs. However, it is not always effective with low grade tumors. I think this is why it is not used immediately when someone is diagnosed with low grade bladder cancer.

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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7 years 7 months ago #41362 by corkyd614
Hi All,

I know I'm fairly new at this site but maybe someone can shine some light for me on something that is certainly on my mind.

I was diagnosed in January with BC and underwent TURBT and two tumors were removed. One superficial and the other low grade. After consulting with my doctor we agreed that the best course of action was to undergo BCG treatments. I have just finished the fourth treatment so far and I am fortunate that I am not having bad side effects.

My question is if the treatment is available and has proven so far to prevent recurrences some times. Why do the doctors and patients hold off on the treatments until recurrence does happen? Only to have to undergo another TURBT and then start treatments.

Can someone help me here? BTW I was 70 when I was first diagnosed.

Regards,

Ray

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