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Frustrated with Doctors!!!

7 years 11 months ago #40454 by DougG
Mary,

Amen to the second opinion. Dr. #1 sounds like he may be a good surgeon, but he dropped the ball in not informing you of your UTI for over a week. NOT acceptable. Where are you currently? People on the forum may be able to recommend a good place for a 2nd opinion. Sorry for your bad experience. Glad your UTI is healing.

Anita

Anita
Forum Moderator
Caregiver

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7 years 11 months ago #40449 by dieseldoc
I am a firm believer in wake-up calls!! A lot of people get into a routine and get that ( ho hum ) attitude, doctors are not excluded. Sometimes they need a wake-up call. Don't be afraid of hurting their feelings, this is not about the doctor, it is about you and only you. The second opinion is a must also.


good luck to you

Gary

T1,NO,MO battling bladder cancer since 2005

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7 years 11 months ago #40447 by GKLINE
Right Now is the time to find a bladder cancer SPECIALIST. This is a crummy fast moving little gem and pro-active care is required.
Get that cancer specialist. And if they don't answer your questions to your satisfaction..... walk around the desk and put him (or her) on the other side of the desk, and ask him what answers he would want, if he was the patient!

Second opinion from a respected cancer specialist is #1 on your to do list. This is important so you can go on living and take care of that BUCKET list.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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7 years 11 months ago #40444 by mmc
By the way....I don't think you are a whiner. I do think you need to box your doctor's ears though!
Stage two is muscle invasive and even if it is low grade it is a big darn deal and another uro at a top bladder cancer center is needed.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 11 months ago #40443 by mmc
Stage two and he is talking about BCG? Please get to a bladder cancer specialist for a second opinion right away.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 11 months ago #40441 by Lynda
Hi Mary -

So sorry to hear you're having trouble with your uro. It is frustrating to feel "unknown". Is this Dr. someone you feel confident in? You will definitely hear from others on the forum that a 2nd opinion is always a good idea and you may find that the 2nd uro is better than the first (I did). Also, this treatment plan (whatever it turns out to be) is about you and your care and should include plans for you to live as close to a normal life as possible. If that means going to FL and getting treatment there then your uro should help you do that. Your Dr. is there to help you get better, you are not there to fit into their schedule. You should never feel invisible or neglected - always a bad sign. Get that 2nd opinion - hopefully it will be with a Dr. that "fits" you better.

Lynda

Lynda

3 years UTIs
Indiana Pouch - July 2010
Pulmonary Met. - May 2011
Chemo started June 2011

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