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Frustrated with Doctors!!!

7 years 11 months ago #40438 by bigmar12
Went last week thinking I was getting my first BCG Treatment and found that it was only a consultation of my pathology report from my surgery on the 11/11/11. Had a feeling that that may have been a good day to have surgery, and was pleasantly surprised that I was correct. Pathology showed low grade tumor with clear margins and what the dr. thought was cancer in the upper part was not. We had already discussed BCG treatments and had repeat that discussion again. Was very frustrated that it seemed as though this was the first discussion we had ever had but understand my Dr. is a very busy man. Why should I expect that he would remember these discussion with me???? So, went yesterday to start my first BCG treatment only to find that I had a UTI and would not be able to have the treatment. Frustrated with this news, I question what the specimen showed last week and found that it was the same last week, but the Dr. never sent it out and never started me on an antibiotic. So am now day 2 into the meds and realize what it feels like not to have a UTI. All this time I what I thought was typical side effects from the surgery and chemo after the surgery was actually the UTI. At this point I am very frustrated with my Dr. and this disease. As I am sure you all know very well it is very hard to make any long term plans. Fortunately, I am into my 3rd year of retirement and 2nd year of Bladder Cancer. I had hoped to travel to FL during winter, but am finding this is very difficult to plan due to unexpected developments. At this point with the frustration I feel in regards to my Dr. and treatment my plan is to get as many BCG treatments as possible. I am scheduled to head south Jan 30th and plan on going whether the treatments are done or not. I will be close to Tampa and hope to be able to go to the Moffit Center there. I guess it is time to get that second opinion that I have been procrastinating. I feel lucky that I only have a Stage Two, but can't help feeling that I am spending every day fighting it!!! When does this let up???? Hope you don't think I am a whiner, but need to vent. Best of Luck to all of you dealing with this terrible disease.
Mary

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