Confusing statistics?

17 years 1 month ago #4122 by Bob_P
Replied by Bob_P on topic Confusing statistics?
Chris, maybe I've got the grading wrong. I've got another cystoscope (my 3 mo. follow up) next Wednesday, so I'll double check. The doctor didn't seem worried at all so maybe I'm mistaken about the grade. Maybe it was T1G1? I know it wasn't TaG1; there was something elevated.
I'll let you know.
Bob P

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17 years 1 month ago #4111 by cta7978
Replied by cta7978 on topic Confusing statistics?
Hmmmm, Bob I would seriously get a second opinion about not getting BCG for a T1G2. Maybe your doc knows what he is talking about, but?

I would at least look into the "induction" 6-weekly treatments of BCG. Get a second and third opinion. Generally your tumor would fall in the "Intermediate" risk zone, I would prefer conservative overtreatment than undertreatment. Your doctor may be waiting for a recurrance before bumping you up to the "High risk category" and advising BCG.


Low ( TaG1, T1G1 unique)

Intermediate (T1G1 multiple, TaG2,T1G2 unique)

High (T1G2 multiple, G3, +Tis)


Chris A.
Diagnosed T1G3 - 3/01/06
37 yo, Seattle, WA

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17 years 1 month ago #4080 by Bob_P
Replied by Bob_P on topic Confusing statistics?
Yes, it was interesting but they seem to be talking about G3 with BCG treatment. My dr. didn't recommed BCG since it was only T1G2.
That part about 40% of T1 diagnosis being understaged and muscle invasive was a little scary. But maybe, again, that is G3 not G1 or G2?

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17 years 1 month ago #4073 by cta7978
Replied by cta7978 on topic Confusing statistics?
Excellent article Wendy - Thank you! - As Bob can see for this study, the long term outcomes for T1G3 was like 80% (10 year - progression free) - probably even better long-term odds for a T1G2.

Chris A.
Diagnosed T1G3 - 3/01/06
37 yo, Seattle, WA

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17 years 1 month ago #4072 by Zachary
Replied by Zachary on topic Confusing statistics?
I had my first follow-up from my surgery with Dr. Stein at USC/Norris last week, and I asked him point-black what chance my cancer had of popping up again in the next five years. The American Cancer Society has pretty grim numbers for my situation--T3aN1M0.

Dr. Stein said 50%, which are much better odds than the ACS.

When I asked him why there was such a difference, he said that, quite frankly, they get better results at Norris.

Which is a pretty good reason to choose the best hospital and surgeon you can find.

Plus, and this is no small plus, Dr. Stein is a great person as well as an amazing surgeon. I couldn't be more fortunate that my urologist here in Santa Barbara recommended him.

"Standing on my Head"---my chemo journal
T3a Grade 4 N+M0
RC at USC/Norris June 23, 2006 by Dr. John Stein

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17 years 1 month ago #4068 by Bob_P
Replied by Bob_P on topic Confusing statistics?
Thanks Christopher and Wendy. and I'll check out that article Wendy.
Bob P

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