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7 years 11 months ago - 7 years 11 months ago #40417 by maryland_mike
maryland_mike wrote:

maryland_mike wrote:

Update #3 - had 4th BCG two days ago. The last two BCGs have produced more pronounced side effects - mainly lots of blood in the urine for approx. 8 hrs, starting approx. 4 hrs. after each treatment (then it clears up). A dull ache in the urinary tract and testicles is also noted. I also have felt like I'm coming down with something, with minor chills and a low fever (99), about the same duration as the bloody urine. My uro says that's a good sign the BCG is working - looks like Mssr. Calmette and Mademoseille Guerin are ripping me a new bladder! (:<) Two days after each treatment, I feel great - no more after-effects, other than quick and strong urge to urinate. Two treatments to go!!!


Add-on: At the 4th BCG session, my uro said he prefers to do another TURB at the 6-wk. post-BCG point instead of just another cystoscopy. I like this idea, as there are articles in the literature confirming frequent benefit of a 2nd TURBT after the first. It's worth another outpatient surgical visit to me.


Update #4: Had 5th session yesterday. Same after-effects as in 4th - even same fever reading. I feel a little more rundown this morning than in previous treatments. ONE TO GO! The doc doesn't want to decrease dosage - neither do I. Have a great week, everyone!

TURBT, HoLAP, bladder stone ablation 9/28/11
Ta, Mx, Nx

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7 years 11 months ago #40385 by maryland_mike
maryland_mike wrote:

Update #3 - had 4th BCG two days ago. The last two BCGs have produced more pronounced side effects - mainly lots of blood in the urine for approx. 8 hrs, starting approx. 4 hrs. after each treatment (then it clears up). A dull ache in the urinary tract and testicles is also noted. I also have felt like I'm coming down with something, with minor chills and a low fever (99), about the same duration as the bloody urine. My uro says that's a good sign the BCG is working - looks like Mssr. Calmette and Mademoseille Guerin are ripping me a new bladder! (:<) Two days after each treatment, I feel great - no more after-effects, other than quick and strong urge to urinate. Two treatments to go!!!


Add-on: At the 4th BCG session, my uro said he prefers to do another TURB at the 6-wk. post-BCG point instead of just another cystoscopy. I like this idea, as there are articles in the literature confirming frequent benefit of a 2nd TURBT after the first. It's worth another outpatient surgical visit to me.

TURBT, HoLAP, bladder stone ablation 9/28/11
Ta, Mx, Nx

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7 years 11 months ago #40375 by Alan
Mike,

Sounds about "normal" whatever that should be! As installations go on my ability to hold the BCG went down on #10-11-12. About 40 minutes. I was on a 6 on 6 off then 6 and that was it. All I know is it worked and it sure beats taking chemo!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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7 years 11 months ago #40366 by dukel
Mike, I also had BCG that didn't work for me. The only side effects i had was flu like. All i would like to tell you is to go the extra mile with the Bcg. The other options will still be there, but I hope you won't need them.
Wishing you the best.
Duke

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7 years 11 months ago #40320 by maryland_mike
Update #3 - had 4th BCG two days ago. The last two BCGs have produced more pronounced side effects - mainly lots of blood in the urine for approx. 8 hrs, starting approx. 4 hrs. after each treatment (then it clears up). A dull ache in the urinary tract and testicles is also noted. I also have felt like I'm coming down with something, with minor chills and a low fever (99), about the same duration as the bloody urine. My uro says that's a good sign the BCG is working - looks like Mssr. Calmette and Mademoseille Guerin are ripping me a new bladder! (:<) Two days after each treatment, I feel great - no more after-effects, other than quick and strong urge to urinate. Two treatments to go!!!

TURBT, HoLAP, bladder stone ablation 9/28/11
Ta, Mx, Nx

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8 years 22 hours ago #40189 by rbmc
Hi Mike. Good luck with #3. Procedure is a breeze, other effects are touch & go per person. Doc even gave me a pill to help with bladder incontinency (frequency), which helped. Drinking beer DIDN'T help!!I just graduated from BCG yesterday. Mine too will be 6 weeks for the next scope.

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