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Newbie! I\'m checkin\' in....

9 years 6 months ago #47209 by Alan
Replied by Alan on topic Newbie! I\'m checkin\' in....
I am free 6.5 years out!
DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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9 years 6 months ago #47208 by sara.anne
Replied by sara.anne on topic Newbie! I\'m checkin\' in....
CONGRATULATIONS!! And thanks for reporting in....it is encouraging to those just starting out.

I am now almost 6 years out and still cancer-free!!!

Sara Anne
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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9 years 6 months ago #47205 by maryland_mike
Replied by maryland_mike on topic Newbie! I\'m checkin\' in....
Well, folks - after 2 years from my last report, I am STILL CANCER-FREE! I have graduated to once yearly cystoscopies, and I have my next annual one on December 8. I will let you know how it goes. BCG FOREVER! It seemed to work on me so far....
TURBT, HoLAP, bladder stone ablation 9/28/11
Ta, Mx, Nx

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11 years 6 months ago #43323 by mmc
Replied by mmc on topic Newbie! I\'m checkin\' in....
Good deal Mike. Glad to hear it and congrats!

Mike
Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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11 years 6 months ago #43315 by CatherineH
Replied by CatherineH on topic Newbie! I\'m checkin\' in....
Hi Mike... So happy you stopped by to catch us up on how things are going. I am ecstatic to hear of your wonderful progress and good checkups.

Your determination to spread the word about the symptoms of BC and the importance of early intervention by sharing your own experience is great to hear. I'm with you on wishing for more research and finding better ways to do battle with this and all cancers.

Congrats and keep up in the loop!
Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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11 years 6 months ago - 11 years 6 months ago #43314 by maryland_mike
Replied by maryland_mike on topic Newbie! I\'m checkin\' in....
Well, it's about time I reported on my wonderful progress. I have been clear of tumors in the bladder after two cystoscopies, each three months apart :) . I will be getting a cystoscopy every three months twice more, then I go to a six-month schedule. I have NOT had any follow-on maintenance BCG treatments after the initial series of six, as both urologists on my case recommended to "wait and watch" due to the low grade of the tumor removed with the diverticulum (via Da Vinci robot) and the tumors resected from my bladder wall. I'm one lucky man, and I urge everyone I discuss my saga with to get to a urologist immediately if they have any symptoms, especially blood in a routine urine sample.

KUDOs to the administrators of this board, and to the patients and victims who so openly discuss their battles with this terrible affliction. Let's all hope and pray that medical science keeps progressing to find more effective weapons against ALL of the thousands of cancer types out there. :)
TURBT, HoLAP, bladder stone ablation 9/28/11
Ta, Mx, Nx

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