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urothelial (transitional cell) carcinoma in situ.

8 years 9 hours ago #39648 by mmc
You can ask your doctor for a referral to a specific place or specific doctor.

Bladder cancer is very specific so a general oncologist is not as good as a bladder cancer specialist.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 9 hours ago #39647 by inland1der
One problem I have is that I have a medicare advantage hmo, and unless I'm referred, I can't just choose to go to them for a 2nd opinion. Just curious, but why not an oncologist? I plan to ask my doctor for a referral out, and I'll have to wait and see. Also have questions about the progression of the cancer, which I will address with him today.

I have really gained some insight into this disease and appreciate the support all who who have responded to my queries have given. Thank you

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8 years 1 day ago #39618 by DougG
Inland,

Keep us up to date. Sounds like you are ready for a second opinion and in your case, DEFINATELY warranted. Best wishes to you.

Anita

Anita
Forum Moderator
Caregiver

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8 years 1 day ago #39614 by Patricia
I would not see a oncologist for a second opinion...i would go to the top uro/oncologists in the state which is in L.A. at USC/Norris.. You have 4 top bladder cancer Urologists/surgeons that are listed as the best in the country. Dr. Inderbir Gill, Dr. Eila Skinner, Dr. Sia Daneshmand and Dr. Stuart Boyd. Plus they may be able to correct the problem with the prostate. Please get an expert opinion. Check them out and see who may be a good fit for you.
http://keck.usc.edu/en/Education/Academic_Department_and_Divisions/Department_of_Urology.aspx
pat

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8 years 1 day ago #39613 by inland1der
Hi, I am in Riverside Ca. I am definitely going to get a second opinion from an oncologist. The uro that gave me the diagnosis is the same one that removed my left kidney. I trust him, but I'm not going to rely on him alone for choices of treatment. Too many things going on. My head's spinning. Thanks for responding

I have really gained some insight into this disease and appreciate the support all who who have responded to my queries have given. Thank you

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8 years 3 days ago #39602 by Patricia
Yeah i think its a huge issue. Where are you located. Is this the same uro who did the other procedures? I do think a second opinion should be done.
pat

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