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urination pain

7 years 7 months ago #41243 by gabriel21
Thanks again Mike, your words are comforting.

Hope you're keeping well yourself.

My father is a male, 65, nonsmoker. Hematuria 01/08 TURB: T1 G3 widespread bladder+prostatic urethra; 3-month BCG.
Clean until 02/11: small TURB with no biopsy; 06/11 tumour detected TURB 08/11: awaiting biopsy, prostatic adenoma removed. Biopsies show both were benign. (...)

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7 years 7 months ago #41242 by mmc
Hmmm...I wonder if those doctors would say the same thing if it was their bladder???

However, I never had a blue light done either. They are relatively new. Even at the hospital that saw what the other guy didn't, they didn't need anything special to see it. They just aimed in right spot. It's easy to miss a spot if you aren't very careful in the searching back and forth and up and down and all around.

Blue light is slooowwwwllly rolling out around the world.

As for convincing him of anything...you know the saying about you can lead a horse to water....

You've done a lot. Sometimes folks just want to do things their way no matter what. Who's to say if it is right or wrong. Either way, we each have to own the consequences of our own decisions.

Hopefully, everything is going to be just fine.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 7 months ago #41240 by gabriel21
Apparently it stands for CT or CAT Scan of the urinary tract.

What you're saying makes total sense. It's a shame the blue light is not being adopted as the standard method. Time/money probably the reasons why?

Our biggest wish as a family would be to convince him to go to a clinic in mainland Spain that uses it, but doctors in Canaries say they don't think blue light makes much of a difference...

Thanks again Mike

My father is a male, 65, nonsmoker. Hematuria 01/08 TURB: T1 G3 widespread bladder+prostatic urethra; 3-month BCG.
Clean until 02/11: small TURB with no biopsy; 06/11 tumour detected TURB 08/11: awaiting biopsy, prostatic adenoma removed. Biopsies show both were benign. (...)

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7 years 7 months ago #41238 by mmc
I'm not sure about Urotac. I think that's the Spanish name for an IVP. Here is info about that: http://www.nlm.nih.gov/medlineplus/ency/article/003782.htm

The IVP can still be clear with CIS but it is good at finding tumors in the upper tract (ureters, kidneys).

It was really weird to me that my uro (tons of experience) didn't see anything on my cystoscopy but two weeks later when I got a procedure done at the University of Colorado Hospital they found a spot right away. I have no way to explain this.


Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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7 years 7 months ago #41237 by gabriel21
Thank you again Mike

Does the Urotac catch the CIS example you mention? Blue light is not available in the Canaries...

The urologist sees hundreds of bladder cancer patients - we really trust the guy because of his experience and references.

Thanks again for the comments!

My father is a male, 65, nonsmoker. Hematuria 01/08 TURB: T1 G3 widespread bladder+prostatic urethra; 3-month BCG.
Clean until 02/11: small TURB with no biopsy; 06/11 tumour detected TURB 08/11: awaiting biopsy, prostatic adenoma removed. Biopsies show both were benign. (...)

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7 years 7 months ago #41236 by mmc
Yes, there are definitely other possibilities. Just because you can't see it doesn't mean it isn't there. CIS can be one cell deep and cover the entire bladder. They have special blue light scopes just to help urologists see things better. It is very common not to see.

The fact that this urologist is saying that is an indication of upper tract is a bit of a cause for concern. Is this at a major bladder cancer center/hospital with a urologist with lots of bladder cancer experience or is this just a different general urologist?

It really makes a world of difference to have a urologist that specializes in bladder cancer.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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