Hi Rocky,
I had mytomycin in 2006/2007. I think I already posted , but a good while ago,- no I don·t think the mytomycin messes you up as much as BCG - it has side effects, but in general those are local, and fairly shortlived. I always scheduled treatment days for Friday, so I had a weekend if there were any problems. Main side effects were a strong burning sensation on voiding the mitomycin, and bladder spasms. A couple of tips - the stuff burns when you void, so try to lash on a good protective cream (Sudocrem is very good) before you let it go, and try to sort of lean forward a bit so it doesn·t run on to your delicate parts. As soon as you are rid of it,but not before, start drinking water, to keep flushing - the more dilute your urine the less the burn.I used to take it easy for the rest of the day, even go to bed if the spasms were bad, but max 24 hours for side effects that affect what you can do- really just that I needed to be close to a bathroom. Having read lots of your posts, and knowing how you cope with things I bet you don·t even miss a beat after treatment! I hope things get sorted with your health insurance, and that the person who stole from you gets their just desserts -Diane
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