After induction BCG my Uro pretty much left the question of maintance up to me. He said if I had CIS he would suggest maintance. In his experience he said less that half of his patientce complete maintance. I don't have CIS, but I do have high grade. I decided to go with maintance for the reasons Sara Anne stated. I'm going to try to follow Dr. Lamm's propocol at least for a while and hope for the best.
47 yo, Ta G3
BCG induction starting 12/17/10 followed by BCG maintance.
I do know of people whose uro only prescribes the "basic 6." However, there have been studies ...don't have the references now...which show that a maintenance regimen improves the disease-free time SIGNIFICANTLY. I understand that BCG is most effective with CIS.
I had CIS with papillary. Had the initial six weeks of BCG and then every four months had three once-a-week instillations. By the time we finished, my dose was down to 1/3 of the initial. This is not exactly Dr. Lamm's protocol, but close.
Go to Dr. Lamm's website
and also read the "common questions" page
for a good overview.
BCG was not fun, but I am very glad that I did it. So far, so good.
Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
I can't speak for anyone else, but once I started BCG (4 yrs ago) I haven't had a re-occurrence. Total 24 BCG's, and so far so good. If there is another CIS re-occurrence, I don't think I can do any more, because near the end I had a lot of problems with BCG.
I did have CIS, but it was caught very early. Maybe that made a difference?
I guess every doctor and every patient is different. Did you get second opinions from other doctors?