New to board- spouse had recent recurrence

13 years 2 weeks ago #37269 by mmc
Bambi,

I'm located in Fort Collins. Hopefully, your husband is seeing Dr. Shandra Wilson. She's at the University of Colorado Hospital and is one of the best of the best.

As you already know, bladder cancer has a very high recurrence rate. I don't know if your husbands case was/is high grade or low grade. In any case, if he's seeing Dr. Wilson, he is in good hands!

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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13 years 2 weeks ago - 13 years 2 weeks ago #37261 by CatherineH
Replied by CatherineH on topic New to board- spouse had recent recurrence
Hi Bambi... Sorry BC has raised its ugly head again for your husband. There are several folks here who have dealt with it for a few years, as well as relative newbies.

One of them posted a few months back that he had a recurrence after 10 years. I thought you might be interested in reading that thread and it can be found here:

Click Here

Please post any questions you might have because there will most likely be someone here who has dealt with it.

Best wishes... Catherine

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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13 years 2 weeks ago - 13 years 2 weeks ago #37255 by Bambi
Replied by Bambi on topic New to board- spouse had recent recurrence
Thank you Sara Anne. We are in the metro Denver, Colorado area.
Bambi

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13 years 2 weeks ago #37254 by sara.anne
Replied by sara.anne on topic New to board- spouse had recent recurrence
Bambi, where are you located?
It is good to know that your husband went so long without a recurrence...and it is also good for all of us to remember to be vigilant.
Wishing you and him all the best for the upcoming "adventure."

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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13 years 2 weeks ago #37252 by Bambi
Hi all-
My husband was first diagnosed with transitional cell bladder cancer in 1998. Between 1998 and 2002, he had several surgeries, several rounds of BCG and then the last one, in the winter of 2002, they instilled Mitomycin. He was not very comfortable for a few months when urinating, but at his next checkup, all looked well and he was cancer free for all this time. Back in January, he mentioned to me that his pee was a "little burny" after he exercised. He assumed he needed to drink more water and it was only after I had surgery in February that he mentioned it again. He downplayed it but I encouraged him to call the urologist and see what they thought. So they had him come in, did the urinalysis for infection (which came back negative) and then sent the urine off for the FISH test and all. It took a good two weeks and we were just expecting to be able to go out and do a mini celebration as we often do after his now yearly checkups. But the test came back showing cancer cells in his urine. After a stressful night, he was actually able to get in the next day for a CT scan to rule out any involvement of the ureters and kidneys. That really scared us and we were very relieved when the results came in the next day and all looked normal on that. He had a scope done the next week and there was an area that was a little red and suspicious( which was biopsied in September 10 and came back ok) and two little of the stalky growths near one of the ureters. So he is scheduled for April 18th to have the resection and have Mitomycin instilled again. His urologist was new to us- my husband was with the older Dr. in the practice and never saw her before, but after his checkup in September we received a letter saying his Dr. was moving away. We really liked this younger woman Dr. though- very much.
I just wanted to reach out on this board- more my style than my hubbies- and I found great help and comfort from a different board for my recent uncomfortable health issues.
I hesitated to post at first because many of you look like you are in the first year or so. My husband has had many many pain free and no treatment free years in here- this is why they are so vigilant with this type of cancer however, and the Dr. reinforced that for us.
Bambi

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