Hi Bill... Sounds like you've had a rough two years but the upside is that you have remained cancer free. I hope your cysto goes well and your uro can find something that brings you relief from the pain.
Best wishes... Catherine
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TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
1st, at 2-yrs I am so far cancer-free ("09" T1 Hi-grade superficial). Had 9-BCG's, then had to stop due to unbearable pain & heavy bleeding. Two attempts later at 10% dose was aborted as everytime they Cathed me, I bleed from the Cath. If there is bleeding at Cath, BCG cannot be given. So Uro has given up on BCG treatment!
Prostate pain during the 4th - 9th BCG got pretty bad, so I was on Antibiotics for 6-mo with little change. The Prostate calmed down for about 4-mo, now the pain/ache has returned big time. It's been about 9+ months since the last BCG!
At the last Cysto (every 90-days) the Uro said my prostate was now pushing into my bladder. Prostate meds and I do not get along, as I have serious side-affects. PSA has risen from <1 to 2.9 over 2-yrs, but this could come from BPH, who knows.
This Wednesday I have the Ole 90-Cysto.
I am also going to be scheduled for Colonoscopy, just to rule other possibilities out
Turbt (May 09)
T1 High grade
Began BCG June 09 (every 3-mo for next 2-yrs)