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Ta High Grade - Questions

12 years 8 months ago #3750 by wendy

Thanks, Wendy. :) It is interesting to hear that Dr. O'Donnell said that. <> Do you know if he does long distance consulting? If so, is it difficult to get an appointment (and one that is soon)?


Sure he does long distance consulting and would be much more able to help if he knew the complete history. Here's some links:
You can track O'Donnell via the U of Iowa site:
http://www.uihealthcare.com/depts/med/urology/urologymds/odonnell.html

Webcafe's info on him
http://blcwebcafe.org/board/m-odonnell.asp

and our page about his treatments with interferon+BCG:
http://blcwebcafe.org/interferon.asp

If you let him know I've already wrote him about your husband good chance he will get back to you promptly. He's a good one to get a second opinion from.

Best,
Wendy

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12 years 8 months ago #3749 by skypilot
I need to add I was supose to have 6 treatment on interferon but only did 4 due to what may have been areaction. It still worked. Don

Hanging in there!

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12 years 8 months ago #3748 by susanb
Wow, Don. That's wonderful! And it's really encouraging to hear for me as well.

I hope that your 3 month check goes well.

Susan

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12 years 8 months ago #3746 by skypilot
 I did not have any success with 6 treatments of BCG, Still had T-1 and still had high grade insitu. That uro was wanted my organs, I got with a cancer center that uro used interferon and 10 percent BCG for a complete clear of tumers and high grade insitu. I go in for my 3 month check march 13, They will have alook and see how it is doing. Thses past 3 months of freedom have been greta. Don

Hanging in there!

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12 years 8 months ago #3745 by susanb
Thanks, Wendy.  :) It is interesting to hear that Dr. O'Donnell said that. After reading what everyone has said about a second opinion, I am planning on starting by talking with my husband's doctor directly (I have not had a full conversation with him myself) and with the friend of a friend who is a cancer specialist. Depending on what they have to say, perhaps it may be good to have Dr. O'Donnell take a look at his case. Do you know if he does long distance consulting? If so, is it difficult to get an appointment (and one that is soon)?

I really appreciate you - and everyone else - going out of their way to consider our BC issues. It is reassuring to have some feedback!

Susan

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12 years 8 months ago #3743 by wendy
Hi Susan,

I was confused after reading your message so I asked Dr. O'Donnell his opinion of the situation, he replied he would treat with BCG+interferon.

BCG did not live up to its reputation in your husband's case, I would think. Although Dr. Lamm says it can take up to 6 months to do it's full job...

O'Donnell's rx could be worth asking about. There is more info on this here:
http://blcwebcafe.org/interferon.asp

Second opinions at this point couldn't hurt.

All the best,
Wendy

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