3-month cysto was clear--why am I Debbie Downer?

13 years 1 month ago #36731 by sara.anne
Replied by sara.anne on topic 3-month cysto was clear--why am I Debbie Downer?
Yes, Kimberly...been there, done that. It is GREAT that you were clear!!! You DO need to rejoice in this. But it it true,
as you say, that there is still a journey ahead, with some bumps in the road. There were the times when I had to skip a BCG due to irritation. Then there were the red spots that my uro was "sure" were just from the BCG, but needed to be biopsied anyway.
BUT now that three years has gone by, it appears that the BCG is over and I am still cancer-free. It WILL happen to you also.

Enjoy a few days of relief...please do...and then get ready to rejoin the battle like the good soldier that you are!!!

We're here to travel with you!!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
Forum Moderator

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13 years 1 month ago #36730 by Kimberly
So the journey continues ... I got through the six weeks of initial BCG and had my 3-month cysto yesterday. This was my first cystoscopy since having two TURBTs and BCG. My uro told me that CIS can show up as red spots, but he also expected to see redness at the site where the tumor was removed. So I was not surprised to see some red spots in the former tumor site, and my uro said he saw nothing that would prompt him to go in for a biopsy.

In other words, it was clear. I had about 30 seconds of euphoria as I left the doctor's office, and then I started to realize that I have to go through this again in 3 months, how uncomfortable the whole process is, three more weeks of BCG coming up in April, and the realization that it's never going to be over hit me. Boom -- euphoria gone.

I called a few family members and found myself saying "it was clear, but ...." Why couldn't I just enjoy the good news instead of focusing on the negative?

Has anyone else experienced this?

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