new guy

Very little side effects of MMC. It did make me nauseous, but most people nothing at all.
Jack

What are the side affects of Mitomycin C? I wounder if my doc just wants to keep it going to make more money? All the places I call will not give me a direct answer, they want to make an appointment to evaluate me.

Hi Gary
Mitomycin C is a chemo drug that is instilled in the bladder for 1 hour immediately following a Turbt. The top Uros recommend this treatment after recurrences.
I too was diagnosed with TA Low Grade tumors in 2005. I did have 2 recurrences of small tumors during 1st 12 BCG treatments.
Since my 3 Turbt, 1 instillation of Mitomycin C, followed by my 3rd set of weekly BCG, and further 12 BCG maintenance treatments I have had no recurrences, which is over 3 years now.
I recommend you get another opinion from a Uro that specializes in bladder cancer.
All the best,
Jack
PS My Uro had given up on BCG after 12 treatments, I did not as the tumors during the recurrences were getting so small.

I don't know if he is. whaat is mitomycin?

Welcome Gary. I'm new to the diagnosis, but if you're spotting tumors on the monitor that the doctor is missing perhaps a 2nd opinion would be prudent. I'm not familiar enough with treatment protocols to advise you on how low grade repeat occurences should be treated. I am curious if they're instilling Mitomycin in your bladder after they perform a TURBT though.

The 5 tumors was just the first time, I've had lots of tumors sence then. The tomures come back on the average of every 8 mounths. The last 2 times I found the tumors on the monitor, he didn't see them.