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8 years 10 months ago #35207 by mmc
Kind of depends (hey, a pun!).

If you want to get a closer experience of post neobladder you could set it every 2-3 hours, wear a Depends and and just pour a little warm water in there every now and again. That might be a bit much though! :)

Your plan of every four hours might be better though. :) By that point, most have a good bit of control during the day so no need for the Depends or the warm water. You'd still have to wear it at night a pour a bit of water though. :O

If you post your paper on a website and then do a link, that is the easiest (if you have a place to do that). There used to be a way when we had the blog section but that is out of commission right now as testing is going on to replace that section.

Would love to read it though. Good luck!

..by the way, I was just kidding above. I think you probably have a pretty good idea of things based on what folks here have told you and if you read some of the threads from newly diagnosed folks.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 10 months ago #35206 by Patricia
Peri,
Kind of depends on if you're just focusing on invasive bladder cancer and neobladdders. And there are so many variables ..the surgeon for one, if you're male or female, ..Setting the clock in the post surgical period is to train the neo or the Indiana to hold more. Some have no difficulty training at all..others have an impossible time of keeping dry. Vast differences in the types of neos and Indiana's. And these are the people who have hopefully gotten rid of their bladder cancer.
The ones living with it are the ones on a BCG regimen and continual trips to the uro every 3 months and hope for an all clear so they can graduate to every 6 months and then its a vigilant watch for the rest of their lives.
pat

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8 years 10 months ago #35205 by student11
Hey guys! I'm sorry I've been out of touch for a while...college applications...you know the drill. Anyway, I have turned in a rough draft of my paper and I'd love to share it with all of you but I don't know if it will fit in here... is there any way I can make an attachment?

For my "personal" aspect of my project I was thinking about setting alarms every four hours so I have to get up during the night as if I had a neo-bladder. Do you think this would be a good insight into a bit of the life of living with bladder cancer? let me know! Thanks!

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8 years 11 months ago #34689 by Patricia
Katherine.....maybe it is and maybe it isn't. Half of these people never touched a cigarette. Now granted its a bad habit and should be discouraged but there are a lot of other factors out there contributable to bladder cancer.
Exposure to carcinogens in the workplace also increases the risk for bladder cancer. Medical workers exposed during the preparation, storage, administration, or disposal of antineoplastic drugs (used in chemotherapy) are at increased risk. Occupational risk factors include recurrent and early exposure to hair dye, and exposure to dye containing aniline, a chemical used in medical and industrial dyes.

Workers at increased risk include the following:


Hairdressers
Machinists
Printers
Painters
Truck drivers
Workers in rubber, chemical, textile, metal, and leather industries

Also clusters have been found in parts of the US where there is a heavy concentration of arscenic in the water.
a controversy on When chlorine is used to disinfect water it can break down into chemicals called trihalomethanes (THMs), which have been linked to bladder cancer.
And it seems to affect Caucasians more than any other group unless its caused by Infection with Schistosoma haematobium (parasite found in many developing countries)

And the list goes on... but don't smoke anyway.
pat

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8 years 11 months ago #34688 by CatherineH
Hi Peri... I hope the first part of your project was well received by your teacher. I am very impressed with the way you presented yourself and asked for help here.

One very important point I would really like you to emphasize... SMOKING is a leading cause of bladder cancer. This is one more very important reason for young people to choose not to smoke. It's something you don't hear about, especially as a young person. This is a great way to help your fellow students and friends by sharing what you discover doing this project. Kudos to your teacher for being very creative in issuing engaging assignments.

I had never even really heard about bladder cancer until I was told I had it. I've never smoked or had any habits that would contribute to my risk factors, so no one really knows what their futures will hold. But, if you can help avoid a possible pitfall, why not help yourself by staying away from this very destructive (and expensive) habit.

Best of luck!

Catherine
age 56

Best wishes... Catherine
Forum Moderator Team

TURBT 1/21/10 at age 55
Dx: T2aN0M0 Primary Bladder Adenocarcinoma
Partial Cystectomy 2/25/10
Vanderbilt Medical Center
Nashville, TN

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8 years 11 months ago #34668 by student11
I will definitely upload my project on here! I have a 5 page paper due Friday so I'll post that soon and maybe get your guy's feedback, and I'll definitely let everyone know what I do for the second half of my project!

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