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3 month check up moved forward + pain and concern

8 years 10 months ago #33534 by Vertigo99
Thank you Pat, you've been very helpful. I'll post an update after I've seen my uro. Best wishes V

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8 years 10 months ago #33521 by Patricia
Vertigo.....i know lots of people who have gone to The Royal Marsden Hospital. They have a large urology unit. Not sure what the protocol is over there but i would definately check it out for a second opinion.
http://www.royalmarsden.nhs.uk/RMH/healthcare/clinicalunits/urology/
We have several people from the UK on the site and hope they will see your post.
Its really hard to determine what that pain might be..an entraped nerve from positioning on the table for your TURB...i actually had the same thing but after my cystectomy and a chiropractor got me back in shape in 3 sessions. But you should be checked out for any possiblity.
pat

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8 years 10 months ago #33520 by Vertigo99
Hi Pat thank you for responding. I'm in the UK near London. Pain is low back, pubic bone and radiates down inside of leg to above knee then to sole/ball of foot--no pain in leg below knee though. All pain in on left side--same side as tcc. Of ten feel cramps/weakness in left leg. Have an epidermal cyst on left side too. Right side feels perfect. That's why I'm concerned. Warm baths can help.

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8 years 10 months ago #33519 by Vertigo99
Thank you Sara Anne...

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8 years 10 months ago #33515 by Patricia
Vertigo,
where are you located?
Frequent urge to pee usually associated with a possible bladder infection. Unless this has been going on since the instillation of Mitomycin and TURB? Is pain down the inside of the leg or back of the leg? Do any of these symptoms match?
http://men.webmd.com/prostatitis
At any rate its always a good idea to get a second opinion unless you're at a top rated Cancer or University center that deals with a lot of bladder cancer. We can help with that.
pat

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8 years 10 months ago #33514 by sara.anne
Assuming everything goes as "scheduled," your diagnosis is among the very best, if you are going to have bladder cancer. Small papillary tumors are easy to treat with a TURB; yours was found early, before it had time to do a lot of damage. And yes, your uro was correct....you will be "enjoying" cystoscopies for quite a while! The problem with these tumors is that they tend to come back....but you will be on a schedule of exams that will find them early!

When we hear that awful word, "bladder cancer," we all tended to panic. And then we just go on with our lives and live with it. Not happily, but successfully.

Best of luck to you, and feel free to vent here....we can "calm you down"....when we aren't venting ourselves!

Sara Anne

Diagnosis 2-08 Small papillary TCC; CIS
BCG; BCG maintenance
Vice-President, American Bladder Cancer Society
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