Bill,
I also had re-actions to BCG. In fact, it is taking me over a year to get over my last one. (24th) And I do mean last one! My Uro and I both agree that my bladder cannot tolerate any more BCG
So first off: I had reduced to 10% BCG on my last instillation
and still had severe problems. But my bladder already had so much BCG, the 10% meant nothing.
Dr. Lamm also said that he "heats" the BCG for people that can't tolerate it any other way. (My Uro and I agree, we can't even try that)
I did have Ofloxacin after my BCG.
So what do I do now that I know I can't do anymore BCG? I wait, cross my fingers and toes, and hope CIS doesn't return
I will be three years without a re-occurrence in October
. So if it comes back - goodbye bladder. Hopefully, the BCG already got rid of all the CIS and it won't come back!
Good Luck - the reduced BCG does help a lot of people on this website. You can go as low as 1% - all you want is for your bladder to react.
Nancy