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CIS - need your opinions

8 years 5 months ago #32882 by rudyskier
I too must agree with the fellas before me. BCG did not work for me nor did any other treatments... the answer for me was to get rid of the cancer. While at first I admit I thought this was go to be a life changer for me... I am now 7 months out and life for me could not be better.

So seek out the best of the best as far as doctors, advice, surgeons and facilities go and make the decision that is best for you.

Good luck,

Rudy

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8 years 5 months ago #32880 by GKLINE
I must agree with Mike on this choice. If the cancer is "contained" in the bladder and BCG has not removed every last cell, Then "Out It Comes!" But I am not a specialist; only a patient.

I don't even play a doctor on stage.

All kidding aside..... save your life. Follow agressive measures.

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

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8 years 5 months ago - 8 years 5 months ago #32879 by mmc
Be very careful about the "not the option you are looking for" path.

The paper was meant for patients who are not candidates for surgery for whatever reason. Surgery is still the number one recommended treatment for a reason. It has the highest success rate over all other options.

The alternatives are all suboptimal treatments.

Keeping a cancerous bladder that fails BCG is choosing to keep cancer.

The longer one 'keeps' it, the higher the chance that it will spread throughout the body.

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 5 months ago #32851 by Okie
Lori, This came from Urotoday.com

http://www.urotoday.com/images/british/bju1_2010_07.swf

It discusses situations after BCG failures where RC is either not an option or maybe not the option you are looking for.

I hope it is usefull,
Jim

TURB 10 March 2010 dx small papillary TCC, CIS non-invasive
2nd TURB 7 April 2010
1st 6 BCG treatments completed
cysto 6 July 2010 - "No Recurrent Cancer"
Start 2nd round of 6 BCG 23 July 10

Jim

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8 years 5 months ago #32847 by Humpy
CIS = Bladder be gone. That is the only way U of M Ann Arbor would guarantee life for me, and I am all for living.
RC is not the end of life as you know it. It just gets put on hold a while. 15 months post op now, and life has returned to normal. Best of luck, Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

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8 years 5 months ago #32841 by Alan
Patricia wrote:

Lori,
Wow..opinions are divided on this but because you came back as high grade might indicate failure...here's a good paper and cites a lot of top uro's in it.....
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2792453/
Pat


Geesh. My library of bookmarks must have 100 entries. Adding this one too.

Alan

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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