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Lowered dose BCG - so far so good

8 years 6 months ago #32109 by mmc
Ann,

Glad to hear the lower dose is working!!!!
I think (but not positive) that the burning part of it indicates that it is working. It's supposed to cause some reaction.

I don't know about the cloudy bit. You may want to ask your uro. Could be cells sloughing off due to BCG, or something else entirely.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

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8 years 6 months ago #32108 by pemquid
I completed my 3 weeks of maintenance BCG yesterday at the 1/3rd dose, and all seems to be fine. I just had some burning and frequency, but it's very manageable. Urine has started looking a little cloudy about 14-16 hours after the treatment, and I don't know what that's about, but I feel pretty OK so am not going to worry (or should I?). Next check-ups are July and October, and next BCG isn't for another 6 months (November) so I'm looking forward to a good summer.

Ann

Small TA Grade 1, May-06; recur (2 tiny), same, June-08; TURBTs both times. BCG begun July-08, dosage to 1/3rd May-10, completed treatment December-11. All clear since 2008.

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8 years 7 months ago - 8 years 7 months ago #31866 by Alan
Jack, Thanks for the update. Sounds encouraging for all! Our site never ceases to amaze me with info!

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 years 7 months ago #31862 by Moonerj
Hi Alan
Bioniche is the sponsor of our Canadian bladder cancer network website.
www.cbcan.org
The trials are continuing in phase 111. Should have some preliminary results late this year.
Results comparing their product directly vs BCG will be a few years away.
Phase 111 trials are BCG refractory patients.
I can tell you that the people I know at Bioniche are extremely positive about their product.
When I hear more information I will post.
Jack

TA Grade 1
3 Turbts
30 BCG Treatments
Cancer Free since Nov 2007

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8 years 7 months ago #31858 by Alan
Everything I have read says using one's immune system would be ideal. There was even an immune response with severe grade melanoma's sometime last year on a tiny trial and while only 1 person responded out of 9 that person beat it back.

DX 5/6/2008 TAG3 papillary tumor .5 CM in size. 2 TURBS followed by 6 instillations of BCG weekly with a second round of 6 after a 6 week wait.

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8 years 7 months ago #31855 by mmc
Logically, it seems like anything that can cause a sufficient immune response causing the bladder to kill the cancer cells would be good.

Mike

Age 54
10/31/06 dx CIS (TisG3) non-invasive (at 47)
9/19/08 TURB/TUIP dx Invasive T2G3
10/8/08 RC neobladder(at 49)
2/15/13 T4G3N3M1 distant metastases(at 53)
9/2013 finished chemo -cancer free again
1/2014 ct scan results....distant mets
2/2014 ct result...spread to liver, kidneys, and lymph...

Please Log in or Create an account to join the conversation.

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