Forum

× click the New Topic button to post

Going for 2nd opinion - need your help

8 years 7 months ago #31604 by Humpy
^^
+1 for wanting it OUT!!!!!!!!!!!!!!!!!!

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31602 by GKLINE
Lori
Pat's advice is the Best! My situation was "aggressive bladder cancer" and within a month I had 2 TURBs and a Full Radical Cystectomy. I am 18 months out and life is normal again! Follow the more aggressive treatment schedule if you have a choice. BCG treatments were never mentioned in my case. I am so glad, now that I have more information, that BCG was never an option. I wanted it OUT!

George

Light a man a fire and he is warm for an evening.
Light a man ON fire and he's warm forever.

08/08/08...RC neo bladder
09/09/09...New Hip
=
New Man! [/size]

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31600 by Andy
Hi Lori -

RC was recommended with no muscle involvement (scenario 2) do to the quickness my cancer had returned. In 5 weeks from my 2nd TURBT I went from my bladder being cleaned out to being full of cancer again with CIS showing up also. Given my age, my surgeon said my best odds for no recurrence were to do the RC. And I think in scenario 3 the "probable" RC was dependent on how effective the chemo would be, especially if the cancer had moved to the Lymph system and beyond. I think a better term would have been delayed instead of probable. Pat's response is, as usual, right on the money. Glad to hear you've got a top notch doc - you're on the right track! Good luck and keep the questions coming.

Andy

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31597 by Patricia
Hi Lori,
You're seeing a top specialist in bladder cancer in Dr. Pruthi..he's seen it all and written about it.
Under articles of Interest on the forum you'll find many papers written on T1G3.....the caveat being if it returns after BCG or Mitomycin C..its pretty aggressive and end results are better with a cystectomy and reconstruction. You absolutely want to make sure you have not been understaged.
T2 is always muscle invasive and cystectomy a given. Whether or not chemo is advised..its individual to the person. If CT/PET scans, bone scans, blood work all clear chemo may be withheld until after cystectomy. It depends on your doctor. I was T2a just into the first muscle and no pre-chemo given. I was totally clean after cystectomy so i did not have to face that protocol. In fact my surgeon who performed my Re-Turb did such a incredible job of getting all of the tumor and margins it had not come back and i actually had a clean bladder with a few marginal displasic cells floating around. It would have come back and i'm happy that i headed it off at the pass.
Make sure you understand all 3 diversions if that may be necessary.
pat

Please Log in or Create an account to join the conversation.

8 years 7 months ago #31596 by LoriK
Andy, if there wasn't muscle involvement then why would RC be recommended (scenario #2)? In your 3rd option - muscle involvement - why would RC be probable and not a certainty?

Good Luck to you and I look forward to your thoughts. LORI

Age: 52
DX on 2.18.10
T1, G3

Please Log in or Create an account to join the conversation.

8 years 7 months ago - 8 years 7 months ago #31590 by Humpy
Lori,
I, Like Andy was T1G3. My first Uro wanted to go with BCG. I also went to U of M for a second opinion.
They told me that my type of cancer wouldn't even be receptive to BCG.
So I would be asking that. Is your type of cancer receptive to BCG?
The only way they could guarentee life was a RC & Neobladder. I like Andy, really didn't like the idea of the continuing saga of BCG. I had surgery, and within 6 months, for the most part, it was behind me.
A second opinion is the best thing you can do.
Keep the big picture in mind..........LIFE.

We are here for you, Jim

Age 54
T1NOMX,Grade 3 Urothelial CIS (Carcinoma in Situ)
Neobladder 5/19/2009
Prostate Capsule Sparing
U of M Hospital, Ann Arbor, Michigan

Please Log in or Create an account to join the conversation.

  • Not Allowed: to create new topic.
  • Not Allowed: to reply.
  • Not Allowed: to add attachements.
  • Not Allowed: to edit your message.
Moderators: Cynthiaeddieksara.anne

Users

Total Online: 1 User and 440 Guests 
Regor's AvatarRegor

Legend: Site Administrator Global Moderator Moderator Banned User Guest

Statistics

Total Messages: 50854 Total Sections: 1 Today Open: 0 Today Total Answer: 4
Total Subjects: 6515 Total Categories: 11 Yesterday Open: 0 Yesterday Total Answer: 3
Total Users: 7775 Latest User: Sjklawi
Powered by Kunena Forum